Not sure if this is the best place to post........
I've been ill for just over 2 1/2 years now. In that time I've had my appendix, gallbladder, and left ovary removed. I've also had exploratory surgery, ovarian cysts drained, and viral meningitis. On top of all that I have extreme fatigue, joint pain, swelling, and stiffness (mainly hands, knees, ankles, and feet.) I get extreme nausea/ sickness, crippling lower abdo pain, pluretic pain on right side, brain fog,chilblains, mouth and nose sores, numbness, tingling, and pins and needles in hands and feet. My toes and fingers turn blue and are always freezing cold- I also have large, painful bunions on both feet which are made worse when wearing socks (thus making cold feet even colder). Recently I have also had sortness of breath and chest pain when lying down.
So far I have been diagnosed with: Chronic pelvic inflammatory disease (swabs, blood, and fluid samples all come back negative for sort of infection), pelvic congestion (large bulging veins seen in pelvic areas during operation), Raynauds, inflammatory arthritis, carpel tunnel syndrome......
After being fobbed of by numerous doctors, turned away from A&E, and made to feel like a fraud, I have finally been referred to Rhuematology for suspected SLE.
I am seeing Prof Bruce at Manchester Royal (he is really nice, as are all the staff. Finally feel like someone is listening to me and will hopefully be able to get to the bottom of it all). He has ordered numerous blood tests, chest x-ray, breathing test, Echo test, and nerve test- results are due in a couple of weeks. In the mean time he has put me on 10mg steroids (instead of naproxen), given me wrist splints, and i'm still on 10mg bu trans pain patch, along with tramadol, and cyclizine.
As well as Lupus, vasculitis, hughes,systemic sclerosis, and scleroderma have all been mentioned
Has anyone had any similar experiences/ advice?????
n.b, i have had several miscarrages in the past.