Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,356 members • 10,544 posts

All posts for March 2014

Can you test positive for APS one year and test negative another year?

armywyfRN

•10 years ago

20 Replies

VIA Hughes Syndrome Foundation Charity Website/Kate.H - A QUICK VOTE may make all the difference!

I just voted myself, it took a few seconds: Easy to do: See details below: Thank you to the thoughtful member of the public who nominated our charity for a...

I just voted myself, it took a few seconds: Easy to do: See details below: Th...

MaryF

Administrator•10 years ago

7 Replies

Is the GP computer dosing accurate?

I used to self manage before getting pregnant but since I've had my baby I've been getting my inr checked at my gp as it has been a bit up and down. They use a...

I used to self manage before getting pregnant but since I've had my baby I've be...

Lani

•10 years ago

4 Replies

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pregnant and just diagnosed with aps

Hi everyone, I was just wondering if anyone has had a similar experience to this and a better understanding of it than I have. I had a late miscarriage last...

Hi everyone, I was just wondering if anyone has had a similar experience to this...

kateg84

•10 years ago

25 Replies

In a "Flair"..

i seem to be in a "flair"..having trouble seeing..concentration and daily chores...hate to tell my doctor because he always sends me for mri..blood..cat scan...

i seem to be in a "flair"..having trouble seeing..concentration and daily chores...

happee1

•10 years ago

5 Replies

Does anyone have problems with being allergic to medication? I seem to swell up or retain fluids if I take medications.

I was dx as seronagative APS/Hughes by Hughes center. I have been taking clexane for about 7months. I was wondering if anyone has noticed if they take Blood...

I was dx as seronagative APS/Hughes by Hughes center. I have been taking clexan...

designer16

•10 years ago

6 Replies

Anyone else been sent to OH after being off sick if so what was the outcome?

Gone back to work after being off with a chest infection plus chickenpox. Tried telling the boss about what i suffer from even given him leaflets but he does...

Gone back to work after being off with a chest infection plus chickenpox. Tried ...

gratefull

•10 years ago

4 Replies

Hormonal changes and Hughes syndrome

Has any of the ladies here experienced a "flare up" of symptoms with hormonal changes?

Has any of the ladies here experienced a "flare up" of symptoms with hormonal ch...

armywyfRN

•10 years ago

8 Replies

Professor Graham Hughes' BLOG February 2014 via London Lupus Centre

February 2014 This time, a real record – the wettest winter ever recorded here in the southern part of Britain! Terrible flood scenes. In this month’s blog I...

February 2014 This time, a real record – the wettest winter ever recorded here ...

MaryF

Administrator•10 years ago

6 Replies

Seizures and partial seizures

Been to clinicl this morning, I have lots of different things going on with the latest being tonic clonic seizures. In August 2012 I started with what I call...

Been to clinicl this morning, I have lots of different things going on with the ...

annie330

•10 years ago

3 Replies

Anyone with APS have trouble sleeping?

Hi everyone, I frequently have trouble staying asleep through the night and have horrible post nasal drip. Does anyone else have this and what have you done...

Hi everyone, I frequently have trouble staying asleep through the night and have...

Mom3mmc

•10 years ago

19 Replies

Meeting in Staffordshire / Derbyshire :)

Hi, I'm holding a meeting / support group for the Staffordshire / Derbyshire area and it's the 1st meeting this year....it's on the 11th April at The Stanhope...

Hi, I'm holding a meeting / support group for the Staffordshire / Derbyshire ar...

Suzypawz

•10 years ago

21 Replies

memory problems

I used to be a very relaxed chef ,since ive had aps im not the same person I forget items and get very worked up do other people have these problems or am I...

I used to be a very relaxed chef ,since ive had aps im not the same person I for...

roymelt

•10 years ago

12 Replies

Sainsbury school vouchers -ACTIVE KIDS 2014

Hi if anybody sees these tokens at checkout, please may I have them, if you do not have a use for them. Collecting for: The School Room, Boxford Ward,...

Hi if anybody sees these tokens at checkout, please may I have them, if you do n...

MaryF

Administrator•10 years ago

2 Replies

How often is Hughes syndrome misdiagnosed for a conversion disorder...

Since Hughes syndrome can present in so many forms and often confused with MS, how many have been told they have a conversion disorder or FND? One day I...

Since Hughes syndrome can present in so many forms and often confused with MS, h...

armywyfRN

•10 years ago

6 Replies

PRESCRIPTION charges rising again in the UK - VIA Hughes Syndrome Foundation

We are expecting yet another increase in the price of prescription charges in England any day now. The Hughes Syndrome Foundation is pleased to be one the...

We are expecting yet another increase in the price of prescription charges in En...

MaryF

Administrator•10 years ago

1 Reply

APS dx with pregnancy but has not been treated since

Hello everyone! I am new to this forum. I am in desperate need of insight to APS. I was initially diagnosed 7 years ago during pregnancy and was treated...

Hello everyone! I am new to this forum. I am in desperate need of insight to AP...

armywyfRN

•10 years ago

7 Replies

Has anybody been diagnosed with Hughes syndrome but never had any symptoms of it?

I have vasculitis and am having lots of investigations to find which type (it's looking like PAN hopefully cutaneous type). Dr doc told me I have tested...

I have vasculitis and am having lots of investigations to find which type (it's ...

xxbluebooxx

•10 years ago

3 Replies

Is anyone have neurology problems, like spams,cramps, paresthesias, facial shin splints,who got huges syndrome? Which treatment ?

Are you having besides anticoagulation anothers drugs for breaking down the neurological problems? Is any test that show to the doctor we have neurogical...

Are you having besides anticoagulation anothers drugs for breaking down the neur...

salva76

•10 years ago

5 Replies

After a recent test my inr came back at 6.88. Only change in my life was the use of codrydamol for general pain relief.

Topdog

•10 years ago

3 Replies

St T's appointment brought forward.

I was referred to St T's by my rheumy up here. It was supposed to be a one off. They saw me twice; told me to come off warfarin, go on plaquenil (both of which...

I was referred to St T's by my rheumy up here. It was supposed to be a one off. ...

stillwaiting

•10 years ago

2 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for March 2014

Can you test positive for APS one year and test negative another year?

VIA Hughes Syndrome Foundation Charity Website/Kate.H - A QUICK VOTE may make all the difference!

Is the GP computer dosing accurate?

pregnant and just diagnosed with aps

In a "Flair"..

Does anyone have problems with being allergic to medication? I seem to swell up or retain fluids if I take medications.

Anyone else been sent to OH after being off sick if so what was the outcome?

Hormonal changes and Hughes syndrome

Professor Graham Hughes' BLOG February 2014 via London Lupus Centre

Seizures and partial seizures

Anyone with APS have trouble sleeping?

Meeting in Staffordshire / Derbyshire :)

memory problems

Sainsbury school vouchers -ACTIVE KIDS 2014

How often is Hughes syndrome misdiagnosed for a conversion disorder...

PRESCRIPTION charges rising again in the UK - VIA Hughes Syndrome Foundation

APS dx with pregnancy but has not been treated since

Has anybody been diagnosed with Hughes syndrome but never had any symptoms of it?

Is anyone have neurology problems, like spams,cramps, paresthesias, facial shin splints,who got huges syndrome? Which treatment ?

After a recent test my inr came back at 6.88. Only change in my life was the use of codrydamol for general pain relief.

St T's appointment brought forward.

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