Has anybody been diagnosed with Hughes syndrome but never had any symptoms of it?

[xxbluebooxx]

I have vasculitis and am having lots of investigations to find which type (it's looking like PAN hopefully cutaneous type). Dr doc told me I have tested positive for antiphospholipid antibodies.

He explained that a second positive result is required to confirm diagnosis. I just wondered what the likelihood is of second one being negative?? Or is it possible that I have Hughes syndrome with no symptoms???? Just to add I have no past medical history of miscarriage etc and no family history of this either ( I know many ladies with HS unfortunately suffer from this.)

[Lure2]

HI,

They say that livedo reticularis is a sign of Huges (APS). The worst thing that can happen is that you go undiagnosed for several years and get a lot of neurological or heart/lung problems. We have all waited for a diagnose and an APS-doctor (most doctors do not understand this strange and new illness!!).

Then you can be treated for it. That is very important. If I were you, and if you get your second result positive also, try hard to find an APS-doctor and perhaps read the book"Sticky Blood Explained" by Kay Thackray. It is very good.

Good luck and hope for a good answer.

Kerstin in Stockholm

[xxbluebooxx in reply to Lure2]

Hi kerstin, thank you for your reply. I should have mentioned i do have livedo on legs and arms but also had cutaneous nodules on limbs too. Skin biopsy showed vasculitis so docs are thinking cutaneous PAN. Maybe I have both conditions just have to wait and see.

[xxbluebooxx]

Oh the joy of autoimmune conditions! Thank u for your response x