Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,356 members • 10,544 posts

All posts for March 2014

pick me up!

Recently i found an article on hughes syndrome in pick me up magazine issue 12, 20th march. I'm so pleased that hughes is becoming recognised more and more. I...

Recently i found an article on hughes syndrome in pick me up magazine issue 12, ...

leyton

•10 years ago

14 Replies

Casey

Well off to the Vet's with Casey -- He knows some thing is up. - I'm getting that look !!!!! no breakfast is another tip off and a brushing this early in the...

Well off to the Vet's with Casey -- He knows some thing is up. - I'm getting t...

jetjetjet

•10 years ago

12 Replies

VIA Hughes Syndrome Foundation - INR Debate

The debate over INR ranges for APS patients is still going on. In this article, the doctors question the wisdom of having such a low range (between 2.0-3.0)...

The debate over INR ranges for APS patients is still going on. In this article, ...

MaryF

Administrator•10 years ago

7 Replies

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Shock at the doctors today

I have been very naughty and not signed in lately so how bad am I doing it when I have had a shocking day. I have osteopenia so was at the GPs for my calcium...

I have been very naughty and not signed in lately so how bad am I doing it when ...

Jade

•10 years ago

9 Replies

Seeking knowledgeable doctor in North Texas

My GP and OBGYN know very little about Hughes Syndrome/APS and don't know who to refer me to. I have done my own research and have found some Hematologists at...

My GP and OBGYN know very little about Hughes Syndrome/APS and don't know who to...

Lucygoose

•10 years ago

3 Replies

Informal London meeting

Ann Sumra has asked me to post a reminder that she is holding an informal social meeting at the Riverside lounge, Ground Floor, North Wing in St Thomas' on...

Ann Sumra has asked me to post a reminder that she is holding an informal social...

Hidden

•10 years ago

3 Replies

Hi, I am awaiting results of my 3rd blood test to tell me whether I have Hughes Syndrome or not. My mother had HS.

I have been taking Clopidogrel since last September after having a TIA. I now get lots of bruises mainly on my arms and legs which can be big, is this normal?...

I have been taking Clopidogrel since last September after having a TIA. I now ge...

123mif

•10 years ago

3 Replies

Can anyone help with Brain Scan and underlying problems I have been experiencing?

For some time now I have been getting to many headaches they will be very piercing and make me quite nauseous enough that I just cant complete any activities...

For some time now I have been getting to many headaches they will be very pierci...

Danielle2419

•10 years ago

5 Replies

having real trouble with severe dizziness. does anyone take medication or do something to ease the spinning and lightheadedness. need help

packerfan

•10 years ago

24 Replies

Oil Pulling. Does anyone Oil Pull?

I started Oil Pulling maybe it's a coincidence but I feel great!?! It's so simple but It's supposed to be really good for your health, it's a super...

I started Oil Pulling maybe it's a coincidence but I feel great!?! It's...

SassyOne

•10 years ago

9 Replies

article 13th march

article - best i know how to do maryf!!

emmaj

•10 years ago

9 Replies

Warfarin not in range so on it plus Heparin. Joints in hands and wrist, knees and one heel painful - why?

INR has gone below 2 and stayed there for a few weeks now. They keep upping the dose but it is having little impact. This means I have to inject Heparin...

INR has gone below 2 and stayed there for a few weeks now. They keep upping the...

Elaine77c

•10 years ago

6 Replies

INR low

Hi I have an INR of 2.7 at the moment, to cover I have Clexane 40mgs as advised from St Thomas's, until in range Just wondering if anyone else suffers from...

Hi I have an INR of 2.7 at the moment, to cover I have Clexane 40mgs as advised ...

daisyd

•10 years ago

1 Reply

Could somebody please advise me on my thyroid function results ?

" Serum TSH level " 0.05 \\.br \\ ft4 added by lab " Serum free T4 level " 16 pmol / L ( 5.6 - 21) " Serum free T3 level " 7.0 pmol /L ( 3.7 - 7 ) " ON T4...

" Serum TSH level " 0.05 \\.br \\ ft4 added by lab " Serum free T4 level " 16 pm...

Jillymo

•10 years ago

7 Replies

Am I the only one ---I eat something high in vitamin K & about 15 minutes later achey, numbness, stiffness....

I on clexane & vit k shouldn't matter, but I swear it does. I can eat something & 15-20 minutes later I feel it. It's not my imagination because my family...

I on clexane & vit k shouldn't matter, but I swear it does. I can eat something ...

designer16

•10 years ago

6 Replies

I am on Clexane so there are no INR to know if your blood is thick or thin or... How do you know???

Some days I feel like I've got it under control, but then there are days like today. My body feels weird. I hurt. My hands & arms feel cold---almost like you...

Some days I feel like I've got it under control, but then there are days like to...

designer16

•10 years ago

8 Replies

Are complications of APS related to stress or stress let down?

armywyfRN

•10 years ago

8 Replies

Does anyone suffer side effects from taking Plaquenil? I was advised to take it last year but have been very wary. I take Warfarin for APS.

AvsG

•10 years ago

28 Replies

Article Pick Me Up Magazine

The article is in guys, a very shortened article of events,but plenty of info about Hughes, a few things wrong with it slightly incorrect but on the whole im...

The article is in guys, a very shortened article of events,but plenty of info ab...

emmaj

•10 years ago

11 Replies

Has anyone else had a bubble study to assess for a septum defect after a TIA or stroke?

armywyfRN

•10 years ago

3 Replies

Does anybody know how long the results take for APS screen please?

xxbluebooxx

•10 years ago

8 Replies

Sainsburys Activ Kid tokens

Hi guys Please help me collect a vast amount for my local hospital who have come up trumps for us all in various emergencies.... post them to The School...

Hi guys Please help me collect a vast amount for my local hospital who have com...

MaryF

Administrator•10 years ago

4 Replies

Plasmapheresis treatment

I heard that there is a treatment that looks to kill aps antibodies, called plasmapheresis treatment, that cleans the blood with adding donants plasma.it...

I heard that there is a treatment that looks to kill aps antibodies, called plas...

salva76

•10 years ago

7 Replies

Recommending a specialist

Hi everyone. I think I read somewhere that the Hughes Syndrome Foundation is always looking for specialists to add to their list. I just wanted to share my...

Hi everyone. I think I read somewhere that the Hughes Syndrome Foundation is alw...

Hopingforababy

•10 years ago

6 Replies

I have SLE and APS and take warfarin (amongst other drugs). I want to have a small tattoo removed via laser treatment. Anyone else done this

I am guessing that I should get my INR down to a relatively low level and possibly increase steroids for a couple of days but any other advice would be greatly...

I am guessing that I should get my INR down to a relatively low level and possib...

Rockhopper

•10 years ago

1 Reply

A bit of good news re publicising Hughes Syndrome.

When I went have my INR checked at the GP surgery this morning the nurse was telling me that 3 of them had gone on INR training last week. There were INR...

When I went have my INR checked at the GP surgery this morning the nurse was tel...

stillwaiting

•10 years ago

7 Replies

Do you need to avoid vitamin K food on fragmin?

Hi All After 2 years on warfarin, I asked to for my drugs to be reviewed as I had spent 5 months feeling very unwell (INR unstable). I am now on fragmin and...

Hi All After 2 years on warfarin, I asked to for my drugs to be reviewed as I ha...

elt-las

•10 years ago

8 Replies

Warfarin and OTC meds? My dr told me I could take anything without triptans and be OK,

however while researching cold and flu remedies I looked up the inactive ingrediants I didn't recognize and most contain meds that do not interact well...

however while researching cold and flu remedies I looked up the inactive ingredi...

bexter0021

•10 years ago

9 Replies

Is breathlessness a symptom of APS?

I am pregnant and have had one previous pregnancy which ended when i lost my baby at 22 weeks and from the very beginning of each pregnancy (the first 2 weeks)...

I am pregnant and have had one previous pregnancy which ended when i lost my bab...

kateg84

•10 years ago

16 Replies

Early menopause

On top of everything I now seem to be having an early menopause- could this be related to my APS or just a coincidence ?

On top of everything I now seem to be having an early menopause- could this be r...

NBtired

•10 years ago

12 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for March 2014

pick me up!

Casey

VIA Hughes Syndrome Foundation - INR Debate

Shock at the doctors today

Seeking knowledgeable doctor in North Texas

Informal London meeting

Hi, I am awaiting results of my 3rd blood test to tell me whether I have Hughes Syndrome or not. My mother had HS.

Can anyone help with Brain Scan and underlying problems I have been experiencing?

having real trouble with severe dizziness. does anyone take medication or do something to ease the spinning and lightheadedness. need help

Oil Pulling. Does anyone Oil Pull?

article 13th march

Warfarin not in range so on it plus Heparin. Joints in hands and wrist, knees and one heel painful - why?

INR low

Could somebody please advise me on my thyroid function results ?

Am I the only one ---I eat something high in vitamin K & about 15 minutes later achey, numbness, stiffness....

I am on Clexane so there are no INR to know if your blood is thick or thin or... How do you know???

Are complications of APS related to stress or stress let down?

Does anyone suffer side effects from taking Plaquenil? I was advised to take it last year but have been very wary. I take Warfarin for APS.

Article Pick Me Up Magazine

Has anyone else had a bubble study to assess for a septum defect after a TIA or stroke?

Does anybody know how long the results take for APS screen please?

Sainsburys Activ Kid tokens

Plasmapheresis treatment

Recommending a specialist

I have SLE and APS and take warfarin (amongst other drugs). I want to have a small tattoo removed via laser treatment. Anyone else done this

A bit of good news re publicising Hughes Syndrome.

Do you need to avoid vitamin K food on fragmin?

Warfarin and OTC meds? My dr told me I could take anything without triptans and be OK,

Is breathlessness a symptom of APS?

Early menopause

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