memory problems

[roymelt]

I used to be a very relaxed chef ,since ive had aps im not the same person I forget items and get very worked up do other people have these problems or am I just losing the plot cheers

[Manofmendip]

Hi.

I am not the same person since my Dx of APS in 2002 either. So I think you will find many people feel the same.

Best wishes.

Dave

[stillwaiting]

Hello - no I am not the same person. My memory is appalling. I am very laid back though - I think to be honest, it is because I am a wee bit depressed by all this and so I have just withdrawn from the world.

You have been through a lot, it takes time to adjust. Can you talk these things over with anyone in your "real life"? Of course this site is brilliant too

lynn.

[margaretjo]

SDI had to give up my job as a chef coz i couldnt remember orders etc plus the physical aspects of the job were getting to difficult to cope with i was frightened as i was dizzy a lot i would fall with a hot.pan or a knife in my hand i was also taking a lot of time off as i wasnt well

[roymelt]

I get very frustrated with what was easy ,just seems to be difficult now , I just seem to snap more which I never did before

[bevjane74]

My memory was really bad before my diagnosis I put it down to my epilepsy but now I've got a diagnosis of what is causing it I've adapted pretty quickly important things I need to remember such as appointments, dosage of meds and tv programmes I write in my calendar which I check daily, to remember to take my medication I have an alarm on my phone and if I forget anything else then it wasn't that important, I'm not the same person but now I'm a much more organised person, I'm just glad I got the diagnosis because I was starting to think there's no way one person can have this going on medically and it not be something serious, now I know what is going on with me yes my life has changed but a little for the better I now know what I'm dealing with where before hand I was slightly panicky as I didn't kno what was happening to me

[Lure2 in reply to bevjane74]

I guess you are on warfarin now or any other anticoagulation. Have you found an APS-doctor at last?

Thinking of you. Take care

Kerstin in Stockholm

[Lhrlovesmar in reply to bevjane74]

bevjane, if you have to carry a note pad and pencil, do just that! It is your memory. I'm the exact same way. We live a couple blocks away from a big shopping center, I've walked over there only to arrive and forgot what I came over here for! We're still on the green side of the grass, bev and that's all that counts! Blessings!

[Lhrlovesmar in reply to bevjane74]

bevjane, I also have epilepsy. Mine was caused by a ruptured Aneurysm of my brain. The aneurysm burst on April 13, 1974 while I was with my (then girlfriend) wife and she witnessed all of it. My epilepsy (on May 10, 1989) was caused by that trauma to my neurological system and was predicted (after an EEG (brain wave) @ my (then) neurologist in 1987. How did you get epilepsy, if you don't mind me asking?

[daisyd]

Awful isn't it

What medication are you on now?

I have been put on antidepressants really needed them ! It was st Thomas's who recommend them despite crying every time I saw my Gp.

I have now started on hydroxychloroquine which really helps balance, clumsiness, I think I have nearly accepted that I will never become 100% again and as bevjane says I think trying to be more organised helps, lists are now on my I phone just counted over 50, it has become the other half of my memory

[Lhrlovesmar]

Roymelt, no you are not alone with your memory problems. Just keep your mind active (with pets, friends, hobbies). I used to have a great memory, no longer. But, on occasions I AM able to remember something, and to me that is a victory!

[bevjane74]

I've had epilepsy since birth so kind of used to it now I've been asking about whether its possible to have aps all your life because I've had connected health problems all my life I'm 39 now and its always been one thing after another - but with my epilepsy I had doctors telling me until I was 11 I was doing it for attention and would grow out of it until the headmaster at my school seen me having a seizure and wrote to the hospital, had a diagnosis by eeg pretty soon after that, only to go through the same thing at 29 and be referred to a psychologist who could see no reason at all why I was there, they done another eeg and low and behold another diagnosis of primary generalised epilepsy came about, the neurologist tried the same again 2 year ago I then told them where to stick their hospital and now my gp deals with my seizures

[emmaj]

Its probably the hardest part for me I used to be so on the ball,cross referencing skills have gone, organisation and conversations half the time i dont know if theyve been in my head or if ive actually had them with someone!! I find myself exhausted just having to remember and try to organise myself and kids through the day-sometimes even makin dinner at night and cups of cofee the organisation skills involved prove too much and i get really angry and scream and cry with frustration just to let it out! We have to accept were not the same person and thats very hard especially for a stubbon mare like me! - not sure which part is through the strokes and what part is just aps,but before my monthlies i get even worse x