Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,356 members • 10,544 posts

All posts for July 2013

Can't perform my current job do to issues focusing. Has anyone else dealt with this. I was top of my team now I can barely get the work done

mudusa2774

•11 years ago

6 Replies

Hello - just a quick one re my local hospital!

Hi, I am still collecting the school vouchers handed out at the checkouts of Sainsbury and Tesco, I would be so grateful if you could collect these for me, if...

Hi, I am still collecting the school vouchers handed out at the checkouts of Sai...

MaryF

Administrator•11 years ago

1 Reply

Hi, I was recently diagnosed with APS, my current treatment is 3 per day of 100 mgc of aspirin, when is necessary warfarin?

My doctor says that warfarin is not necessary in my condition, when is appropriate?

My doctor says that warfarin is not necessary in my condition, when is appropria...

engineeriso

•11 years ago

1 Reply

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Never-ending confusion! Positive and negative IGg blood results

Hi there, I've used the site before but as my rheum told me he was pretty sure I didn't have Hughes I disappeared for a while... 3 years ago I was tested for...

Hi there, I've used the site before but as my rheum told me he was pretty sure I...

Fairypies

•11 years ago

5 Replies

Unstable INR

Hello again everyone, I hope you are all well and coping in the heat? Hopefully somebody can help me with this. My INR has been unstable since I began...

Hello again everyone, I hope you are all well and coping in the heat? Hopefully ...

anniesensi

•11 years ago

12 Replies

Hi. I'm newly diagnosed with aps. The question I have is does it cause fatigue? My kids are very hard to keep up with lately.

Nweaver

•11 years ago

6 Replies

Past e petition reagarding APS? Can anyone help me find it????

A few months ago I signed an E petition as a sufferer,I think it could have been posted by MARY F it had a wonderful script to the government regarding the...

A few months ago I signed an E petition as a sufferer,I think it could have been...

traceylou

•11 years ago

2 Replies

Confused!

Can't get to grips with reading posts as 'recent' ones baffle me because they don't seem to follow any sequential threads, but if I go to the post page all...

Can't get to grips with reading posts as 'recent' ones baffle me because they do...

panda60

•11 years ago

2 Replies

Hi all - does anyone know why Anticardiolipin levels would increase after 1 year on asprin??

I was diagnosed with APS a year ago when my anticardiolipin antibody levels were 89 - which they said was very high. I have been on asprin for nearly 1 yr...

I was diagnosed with APS a year ago when my anticardiolipin antibody levels were...

apsgirl

•11 years ago

7 Replies

Suffering with every symptom of ASP listed but negative test results

Have now got the test results for hughes syndrome back and all show negative, I have an appointment with a rheumatologist next week so would like suggestions...

Have now got the test results for hughes syndrome back and all show negative, I...

PepperT

•11 years ago

3 Replies

Has anyone had burst blood vessels w/APS & while on Coumadin? I've been having them recently, 2 within the past few days. INR is 3.3.

My range is to between 2.5 & 3.5. Any help is appreciated.

Willa

•11 years ago

4 Replies

Good news

Appealed against being placed in the ESA Work Related Activity Group and despite having to miss the tribunal I won and have been placed in the support group....

Appealed against being placed in the ESA Work Related Activity Group and despit...

panda60

•11 years ago

2 Replies

Symptoms fluctuating

Hi, I am fairly new to all this as I was only diagnosed a couple of months ago. I have had a diagnosis of MS for 10 years and my mobility has been badly...

Hi, I am fairly new to all this as I was only diagnosed a couple of months ago....

Hidden

•11 years ago

10 Replies

What are antiphospholipid antibody markers??

After my London appointment I had a letter that was sent to my rehumatologist and it says they are negative. What does this mean please??

After my London appointment I had a letter that was sent to my rehumatologist an...

Charli84

•11 years ago

4 Replies

Hello all existing members and anybody new - (please be as patient as possible as we all learn the ropes with this new format for our forum)

Hello, I was up some of the night making sense of things, and also aware that we have all been told that there are still one or two problems and niggles to be...

Hello, I was up some of the night making sense of things, and also aware that we...

MaryF

Administrator•11 years ago

10 Replies

Made it through the ether?!!?!!?? :-)

Hi to all members old and new and a big welcome to you all, I'm hoping that some of you are out their, just want to let you know that your admin team is here...

Hi to all members old and new and a big welcome to you all, I'm hoping that som...

jessielou

•11 years ago

3 Replies

What's up with this new site?

I thought I would write a post to clarify a few issues that are being brought up with regard to the platform’s upgrade. First, we’re glad you’re here. I know...

I thought I would write a post to clarify a few issues that are being brought up...

matt

•11 years ago

5 Replies

Patience is the word of the day!

Hi all, Working my way through the new site, had my share of teeth nashing, but it's getting there. We are assured by the team at Health Unlocked that all...

Hi all, Working my way through the new site, had my share of teeth nashing, but ...

jessielou

•11 years ago

3 Replies

News on the Upgrade to HealthUnlocked

As many of you have noticed there’s been an interruption to service today with a new-look site that replaced the existing one. It was a big moment for...

As many of you have noticed there’s been an interruption to service today with a...

matt

•11 years ago

1 Reply

INR , dental work, antibiotics. Road trip

Lissy Lou, hope you are fairing better than I have been. I have been feeling scrappy after having a tooth pulled and taking antibiotics, to save any more...

Lissy Lou, hope you are fairing better than I have been. I have been feeling sc...

tchance11

•11 years ago

2 Replies

Just curious about APS development

Hey guys! As you know I have been diagnosed with APS earlier on this year and just recalled something that my nurse has told me.. apparently.. you can develop...

Hey guys! As you know I have been diagnosed with APS earlier on this year and ju...

xxkellywxx

•11 years ago

2 Replies

Have you ever tried pollen to boost immunity?

In Brazil, some doctors are in favour of the flower pollen consumption (1 table spoon a day) to improve immunity. What is the believe there in the UK?...

In Brazil, some doctors are in favour of the flower pollen consumption (1 table ...

BrazilianBade

•11 years ago

Be the first to reply

Article off the Telegraph

http://www.telegraph.co.uk/health/elderhealth/10163535/Stroke-tsar-Tony-Rudd-A-little-bit-of-stress-is-good-for-you.html Mary F x

http://www.telegraph.co.uk/health/elderhealth/10163535/Stroke-tsar-Tony-Rudd-A-l...

MaryF

Administrator•11 years ago

Be the first to reply

Small purple bruises on upper arms

Hi people, wondered if U can help me I have had 5 recurrent miscarriages and tested positive for lupus anticoagulant in one hospital and negative in another...

Hi people, wondered if U can help me I have had 5 recurrent miscarriages and tes...

lisarig

•11 years ago

8 Replies

Frustrated and still none the wiser.

I had my St Thomas appointment last thursday where I was hoping I was gonna get some answers to my questions, how wrong was I. I went very prepared had...

I had my St Thomas appointment last thursday where I was hoping I was gonna get ...

zoe13

•11 years ago

31 Replies

Lumbar Puncture?

Hi everyone. I had a double lumbar puncture done last week and was wondering if anyone knew how long the headache would continue for? I'm ok when I'm lying...

Hi everyone. I had a double lumbar puncture done last week and was wondering if...

InSpain

•11 years ago

10 Replies

hi all

anyone know how I can buy a copy of transcript of this years patient day and how much pleases

anyone know how I can buy a copy of transcript of this years patient day and how...

rach1081985

•11 years ago

1 Reply

ANTIPHOSPHOLIPID SYNDROME AND HIP PROBLEMS.

Hello, Just a brief question!!!! ........ does anyone know if you can get terrible pains in both hip joints due to the above syndrome. It seems to be getting...

Hello, Just a brief question!!!! ........ does anyone know if you can get terrib...

Julieanne

•11 years ago

23 Replies

Tooth extraction with INR of 4

Morning all, I have a broken tooth which needs to be extracted. My dentist says she will do it at her clinic with an INR of upto 4, whereas my friend who...

Morning all, I have a broken tooth which needs to be extracted. My dentist sa...

tiredmum

•11 years ago

12 Replies

Fibromyalgia

Hi, over the past 8 months i have had severe joint problems, which i put down to hard graft at work.I persevered to see if i could adapt but over the last few...

Hi, over the past 8 months i have had severe joint problems, which i put down to...

mjp1973

•11 years ago

16 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for July 2013

Can't perform my current job do to issues focusing. Has anyone else dealt with this. I was top of my team now I can barely get the work done

Hello - just a quick one re my local hospital!

Hi, I was recently diagnosed with APS, my current treatment is 3 per day of 100 mgc of aspirin, when is necessary warfarin?

Never-ending confusion! Positive and negative IGg blood results

Unstable INR

Hi. I'm newly diagnosed with aps. The question I have is does it cause fatigue? My kids are very hard to keep up with lately.

Past e petition reagarding APS? Can anyone help me find it????

Confused!

Hi all - does anyone know why Anticardiolipin levels would increase after 1 year on asprin??

Suffering with every symptom of ASP listed but negative test results

Has anyone had burst blood vessels w/APS & while on Coumadin? I've been having them recently, 2 within the past few days. INR is 3.3.

Good news

Symptoms fluctuating

What are antiphospholipid antibody markers??

Hello all existing members and anybody new - (please be as patient as possible as we all learn the ropes with this new format for our forum)

Made it through the ether?!!?!!?? :-)

What's up with this new site?

Patience is the word of the day!

News on the Upgrade to HealthUnlocked

INR , dental work, antibiotics. Road trip

Just curious about APS development

Have you ever tried pollen to boost immunity?

Article off the Telegraph

Small purple bruises on upper arms

Frustrated and still none the wiser.

Lumbar Puncture?

hi all

ANTIPHOSPHOLIPID SYNDROME AND HIP PROBLEMS.

Tooth extraction with INR of 4

Fibromyalgia

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