What are antiphospholipid antibody ma... - Hughes Syndrome A...

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What are antiphospholipid antibody markers??

Charli84 profile image
4 Replies

After my London appointment I had a letter that was sent to my rehumatologist and it says they are negative. What does this mean please??

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Charli84 profile image
Charli84
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MaryF profile image
MaryFAdministrator

I agree what has been said above to you already - it is very important to go on clinical symptoms, many people have antibodies that appear to come and go in tests, and then if ignored can have worse symptoms if no treatment. Myself an example of that. I am persistently negative for APS, as I was for Systemic Lupus which has now showed up! Alongside other diseases, and it can't be a coincidence that all my children and extended family are affected including relatives not longer with me, some families showing this cluster of pattern, although I will say at this point not every individual will have this , some do not. Mary F x

MaryF profile image
MaryFAdministrator in reply to MaryF

And: A very useful paper for your GP: ard.bmj.com/content/62/12/1...

Mary F x

Charli84 profile image
Charli84

Thank you. I am sorry for late replies I can't work out this new site. I am not receiving emails anymore and keep having to sign in. :/ xx

jessielou profile image
jessielou in reply to Charli84

Hi Charli

Sill no emails, but Health unlocked are planning on having them back soon!

I think we all having problems staying signed in, again we are assured they are working on it.

Take care gentle hugs love Sheena xxxxxx :-) :-) :-)

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