I am fairly new to all this as I was only diagnosed a couple of months ago. I have had a diagnosis of MS for 10 years and my mobility has been badly affected by it to the point of needing a scooter and sticks etc. After being on Clexane injections for a couple of weeks my mobility improved to the point that I have been walking with no aids at all for the last few weeks the first time in four years!!!!! YAY!!!!! And I have been feeling really well for the first time in ages.
But now my question. Over the last week the stiffness in my hands and the pain and weakness in my legs has started to return and I am limping again and finding it harder to walk once more. I am feeling quite "MS"ish again but I have not been Relapsing Remitting MS for some years now, having gone progressive.
I had put the improvement down to the heparin as did the haematologist so I am wondering if symptoms fluctuate in APS as they do in MS? My neuro and haemo are now thinking that the MS was probably never as severe symptomatically as it was appearing but was being masked by the APS. But it is very disillusioning to have all my symptoms reappearing after feeling so well.
Do other people get fluctuations in their symptoms? And how do you deal with it? Such a steep earning curve. I had got a handle on having MS. I feel like I have to start a square one again.