Just curious about APS development

[xxkellywxx]

Hey guys! As you know I have been diagnosed with APS earlier on this year and just recalled something that my nurse has told me.. apparently.. you can develop APS and it can go away? Like... they can repeat the same blood tests within a year and they results will show negative for APS, is this true?

[MaryF Administrator]

I agree with the first reply here, if clinicians and staff do not fully understand APS, they can quite wrongly go on the test results only, my family is an example of this! You can go through a phase of negative testing, and also some of us continue to show up negative results, but it does not mean that we don't have APS. Many on here have had this happen, only to have their medication wrongly altered with terrible results. I asked also for years if I had Lupus having all the symptoms.. told no.. and have finally passed a test for this - showing I probably have had it for decades! Mary F x

[Hidden]

Ditto MaryF and APSnotFab - previously tested positive and now repeatedly test negative despite clinical history and symptoms. Do not let anyone tell you that you can "grow out" of APS!!!