Hi. I'm newly diagnosed with aps. The... - Hughes Syndrome A...
Hi. I'm newly diagnosed with aps. The question I have is does it cause fatigue? My kids are very hard to keep up with lately.
Oh yes most definitely. Some days it's ridiculous. It is very hard keeping up with kids in full health but add in APS and life is hard. Often seeming basic tasks are very hard. I have always struggled with bending down as my head feels it will explode. I struggle with things which require vigorous movements like cleaning.
What treatment are you on? Is it warfarin? As if your INR is too low that adds to fatigue and brain fog.
Are you getting good support from your GP?
Hi there, and welcome, fatigue is a real problem with APS, has your GP referred you to a rheumatologist as they may want you to try something like 'Plaquenil?- it suits many very well, it is slow to work but once it does it can very much help . If your GP has not referred you we do have a data base of professionals who could help, let us know if you need further detail or help. Mary F x
Hi hon,
Welcome and glad you found us, I empathise with the fatigue and coping with children, mine are older now so a lot easier to deal with. Although ive a feeling the teen years ahead with my autistic son may not be so easy, we'll get through though, usually do!! 
I've been lucky in that Plaquenil , the medication suggested above has helped with the worse of the fatigue, but learning to pace is so important. Not one I'm great at, but do try and prioritise what's important and what can wait till later.
We are here and will help if we can, a bit in disarray as our forum has just gone through an upgrade and things are just about settling down!
Hope you feeling ok today
Take care gentle hugs love Sheena xxxx
Question regarding the fatigue and flare up. Being so new to this, I am not noticing all of this very much .... is it due to APS or the warfarin? I have had mild fatigue and migraines for years, but wonder how much more severe this will get?
When I was first diagnosed I also never noticed any fatigue but for the last 4 months or so, simple tasks like walking to get a news paper or even going 2 floors upstairs makes me feel very very exausted! I have been on wafrin for almost a year and had no explanation from my G.P
I have five kids and the smallest things drain me..thank u for all the responses..
