Aspergillus anyone?: Following my... - Hughes Syndrome A...

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Aspergillus anyone?

Coppernob profile image
4 Replies

Following my bronchoscopy last week I do now know that I have aspergillus, though I don't yet know which strain, or whether it's invasive or an aspergilloma.

Has anyone else experienced this? If so, all feedback gratefully received. Thanks.

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Coppernob profile image
Coppernob
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Coppernob profile image
Coppernob

This may be of some help to you.

cdc.gov/fungal/aspergillosis/

MaryF profile image
MaryFAdministrator

Hi there, thank goodness you have got to the bottom of it! Hope they treat you effectively and you get better soon... here is a site: aspergillus.org.uk/ Mary F x

Coppernob profile image
Coppernob

Thanks for that Mary, I've been wading through that site. Phew, brain hurts!

I've also been searching on here for past posts about aspergillosis and rituximab, as I gather this can be an effective treatment and less horrible in certain ways than other drugs, say cyclophosphamide and/or prednisolone and some of the antifungals, which apparently have limited efficacy. Know where I can find any such posts?

Meanwhile I'll keep plodding through the aspergillosis website!

MaryF profile image
MaryFAdministrator

Just put rituximab in search box top right and they should all come up. Mary F x

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