Hi all- WEll a new year ??????? - Hughes Syndrome A...

Hughes Syndrome APS Forum

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Hi all- WEll a new year ???????

jetjetjet profile image
8 Replies

Late December- ,had some tests done, CT chest ,lower abdomen, and groin area's-- ultra sounds of left lower extremities and all upper exstremities. 2009 had massive clotting going on [AS most of you know } 4 0r 5 months back more clotting not DVT but of the superficial type of course in left leg { same area of left leg - where clots in knee area and groin area} in checking other area's they found fatty liver- and a ingunial herna[ the only thing holding the intestin in is the fat ]. sent to Gastroenterology for treatment. needless to say my life in for radical changes. a strong suspicion of Wilsons Disease- going to go thru 13 tests of blood ; diet to be redone { O BOY ] as if they haven't taken enough away already ? my new dc wants me to lose 16 pounds by JULY ????? . I told her if she wanted 16 ugly pounds gone i would simlpy cut my head offf ?? :-). this broke the ice and lightened the mood.after blood tests done weds the 16 th and more ultra sounds and a meeting with a surgeon -. we wil take it from there if results don't change by july then the next step is a liver bi-opsy { HORRAY} .. i did some research on the Wilsons and there is a direct connection to APS . My new DC when asked what she knew about APS she replied she was formiular with it but didn't know of any connection - so i explained to her that where ever there is blood in my body there could be a connection , and i think i found the facts to bring to her.any one out there that might have any info or sugestions i'm really in need of them. [ other than i'm short old and fat O and lets not forget balding }.- speaking of fat the only place on my body where there is any fat is lower abdomen and lower part of back on each side. An operation will be another problem with my risk factor being so high [-some of you will remember my last surgery. .if i lose the fat 1 st -than the intestine could i guess fall out ?? well off to do my 3 day INR bood draw, with the vampires { I have great people in the lab } and even with the trouble they have sometimes, we get along great !! will be back in a couple of hours and can't wait to get back and see what you guys come up with .. fatty jet

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jetjetjet
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jessielou profile image
jessielou

Hi not fatty jet

Hope bloods went ok, those vampires again, so greedy! No more now jet, you're not allowed anymore conditions I completely forbid it! You getting as greedy as those vampires!!!

Seriously hon, I really hope you don't have anymore to deal with!

Take care my friend gentle hugs love Sheena xxxxx :-) :-) :-)

jetjetjet profile image
jetjetjet

Hay my friend -- thats the same info i found, not found any other - got home tonight only to start a bout of diarrhea[ horray ] just what i needed ????????????i hope it passes by 5:00 in the AM or it will make for an interesting ride to Lebanon:-(------- this could prove to be something else??---- DIAPERS-?????-- O MY GOD - I'M STILL A LITTLE YOUG FOR THAT I HOPE -- i'll keep looking tonight till my night time pills - about 11:00 my time-- thanks my friend .. toilet bound me !!

Hi APsnotFab,

Thank you for your interesting article above!

Kerstin

MaryF profile image
MaryFAdministrator

Happy New Year to you, I hope things smooth out a little for you. Mary F x

jetjetjet profile image
jetjetjet

this APS is a gift that just keeps on giving!!!!!!! :-)

jetjetjet profile image
jetjetjet

WE all should wish our sheena well -- with her recent set back .... GET WELL MY FRIEND :-) :-) :-)

jessielou profile image
jessielou

Hi Jet

Thank you hon, quite a gift bearer is our APS! :-) :-)

Doing ok!!

Love n gentle hugs Sheena xxxxx :-) :-) :-)

jetjetjet profile image
jetjetjet

Glad to hear it -- good news on my end - all superficial clots { according to the tech } are gone from both legs she did today :-)---- now the wilsons , all blood work done , all past history has been scanned into Dartmouths system--- now in a week or so i should have another appointment and some kind of direction we will be heading in . Mary say Hi and glad your ok :-) call me in a.m. if and when you can .. nothing from our Suzy ??????????????? she has me worried that girl :-(. sleep tight my pretty-- get your rest - thinking of you -----me---- fatty

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