I have APS-had pulmonary embolism, 5 miscarriages, bowel obstruction. Now I have MS like symptoms. Dr are confused because there are no Brian lesions, spine lesions are anterior & even though the symptoms of weakness in legs & r arm has got worse the lesion is unchanged. The neurologist said I have a auto immune disease but does not believe in Hughes syndrome or has no experience with it. From what I have read I think I have Hughes.i have tried to find a dr w/o much luck. I am in California,USA. Any suggestions?
Need a dr.: I have APS-had pulmonary... - Hughes Syndrome A...
Need a dr.
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designer16
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um - not sure sure about the state you live in - but Doruk Erkan, MD in NY is the Chairman for APS Action apsaction.org/leadershipmem... - this is a web site showing the lead reasearchers world wide
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HI I HAVE HUGHS SYNDROME CURRENTLY ON NO MED BECAUSE DR SAID TESTS NEG AND I A IN REMISSION HAVE NOT TAKEN MEDS FOR 3 YEARS
