Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,402 members•10,612 posts

All posts for October 2012

Hello all !! new to the foundation but no stranger to aps, Any one suffer with pins n needles???

HI every one ,as i have never spoke or met anyone else with aps ,does any one else suffer with pins n needles numbness to hands lower wrists and toes, bad...

HI every one ,as i have never spoke or met anyone else with aps ,does any one el...

daftdog

•12 years ago

9 Replies

Have you ever taken probiotics?

Hi, I am considering taking probiotics, like actimel or something similar. I am on Warfarin, as I was diagnosed with APS about three years ago. My question...

Hi, I am considering taking probiotics, like actimel or something similar. I...

thomas_tz

•12 years ago

11 Replies

Just wondering if anyone had developed a stutter that comes and goes?

fchristal

•12 years ago

14 Replies

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Memory problems getting worse

I know that memory problems are a symptom of APS but lately I'm having more and more problems concentrating, I can stare at something for ages before it dawns...

I know that memory problems are a symptom of APS but lately I'm having more and ...

Tomcat

•12 years ago

18 Replies

APS and weight gain

Hello. I was diagnosed with APS a few months ago and since then I've gained about 15 pounds. Can someone tell me if they've gained weight with this or lost...

Hello. I was diagnosed with APS a few months ago and since then I've gained abou...

deerwendy

•12 years ago

18 Replies

GLUTEN TRIGGERS APS so says doctor......

Hi.... my doctor here in the states is continuing her education and adding nutrition and herbs and the such for remedies. She came back from a four day class...

Hi.... my doctor here in the states is continuing her education and adding nutri...

hasmoxie2

•12 years ago

17 Replies

Lupus Flare Up!

I think I am having a Lupus flare up again. My hair is falling out more than normal, skin is bright red, my body is painful everywhere, I am so exhausted. My...

I think I am having a Lupus flare up again. My hair is falling out more than nor...

Gorgeous

•12 years ago

5 Replies

Does anyone know how to get a referral to see a doctor who specializes in Hughes Syndrome in or around the Toronto area?

My doctor thinks its stress and doesn't want to investigate other options. I know from my symptoms though that I most likely have Hugh's Syndrome. Thank you so...

My doctor thinks its stress and doesn't want to investigate other options. I kno...

john1969

•12 years ago

7 Replies

Happy Halloween & appointments.

In advance me & Salem would like to say Happy Halloween to you all!! xx I thought I would update you on what's been happenening, like many of us I have...

In advance me & Salem would like to say Happy Halloween to you all!! xx I...

Suzypawz

•12 years ago

9 Replies

can anyone tell me what to expect on my first appt to St. Thomas' for aps please.Positive bloods and physical presentation.

zinnia

•12 years ago

7 Replies

Does any one have swelling on the spine/back problems

For three years ive suffered with lower back pain, it was thought to be a fissure and i was hospitalised a few times with it. when its flared up im unable to...

For three years ive suffered with lower back pain, it was thought to be a fissur...

beckyb

•12 years ago

6 Replies

Thankful

I'm really thankful to all of those who have helped me to come to terms with things. Thank you MaryF especially! I finally got an appointment at St Thomas...

I'm really thankful to all of those who have helped me to come to terms with thi...

MJLS

•12 years ago

5 Replies

Does anybody have Sjodrens?

Does anybody else have Sjodrens, I have just had it confirmed that I have it and i am very worried about the higher lymphoma risk. Have any of you had any...

Does anybody else have Sjodrens, I have just had it confirmed that I have it and...

Jade

•12 years ago

11 Replies

Help!!!!

Hi all!!!! Just a quick question, and I pray someone somewhere can answer?? I'm still waiting for my appointment to come through to see the specialist ref:...

Hi all!!!! Just a quick question, and I pray someone somewhere can answer?? I'm...

Kay722

•12 years ago

12 Replies

Anybody been diagnosed with MS and then found to have APS instead?

Has anybody received a diagnosis of MS from brain lesions seen on an MRI and then be diagnosed with APS instead?

Has anybody received a diagnosis of MS from brain lesions seen on an MRI and the...

mitzygaynor

•12 years ago

18 Replies

INR Self Monitoring

Hi all, I was wondering if anyone has a self testing INR machine who could advise if they recommend it and to anyone who know how much they are, where can i...

Hi all, I was wondering if anyone has a self testing INR machine who could ad...

MJLS

•12 years ago

17 Replies

Private appointment with Prof Hughes

Can anyone tell me the best way to request/book a private appointment with Professor Hughes please? Thanks in advance.

Can anyone tell me the best way to request/book a private appointment with Profe...

Hidden

•12 years ago

14 Replies

pregnancy induction

Im due to be induced next wednesday, im just wondering how they go about inducing someone who has Hughes Syndrome. I have been told i have to stay on Fragmin...

Im due to be induced next wednesday, im just wondering how they go about inducin...

katrinahug03

•12 years ago

7 Replies

Coping with APS

Was diagnosed a month ago after having suffered from a stroke to my right cerebelum a year ago. On Warfarin 7.5 mg a day, with an INR of 2.3. Having...

Was diagnosed a month ago after having suffered from a stroke to my right cerebe...

1818hst

•12 years ago

28 Replies

My doctor has sent me for blood tests for Hughes are the tests at my local hospital as reliable as the London Clinic labs? Thanks :-)

Gibz

•12 years ago

10 Replies

Mouth

Near the end of August I got a fairly bad eye infection (left eye), after a day or so my face stated to go numb on the left side. A few days after the...

Near the end of August I got a fairly bad eye infection (left eye), after a day ...

annie330

•12 years ago

2 Replies

Artoliv

Hey guys, recently my jaw has paralysed to the left side of my face and I had to pay over £200.00 for the dentist to put it back on it's right place. It took...

Hey guys, recently my jaw has paralysed to the left side of my face and I had to...

BrazilianBade

•12 years ago

6 Replies

Eyesight issues

I am having problems with my vision. Sometimes can only see through half my left eye, it's like blurred. Today lost sight in my left eye for about a minute,...

I am having problems with my vision. Sometimes can only see through half my left...

muzza

•12 years ago

8 Replies

Is APS progressive?

Hello everyone - I joined this site quite a while ago,but have only just plucked up the courage to write something! So here goes... I was diagnosed with APS...

Hello everyone - I joined this site quite a while ago,but have only just plucked...

ange1965

•12 years ago

17 Replies

ADVICE ON MIGRAINS AND SYMPTOMS.

I would just like to know if with migrains you can get a pain in the temple with a pain around the eye and back of the head and movement can make it worse,...

I would just like to know if with migrains you can get a pain in the temple with...

oleary

•12 years ago

6 Replies

on warfarin but INR changes daily - my ideal INR for me is3.5

Having been on Warfarin and Heparin(the later should my INR fall below 3) I find of late that my INRs change daily, have the warfarin same time each night....

Having been on Warfarin and Heparin(the later should my INR fall below 3) I find...

daisy11

•12 years ago

5 Replies

AntiCoagulation Europe, part of the AntiCoagulation Self-monitoring Alliance Calls for self-testing monitors to be available on prescription

The countdown has started to the launch of a new campaign aimed at giving long-term warfarin patients greater choice in the management of their condition....

The countdown has started to the launch of a new campaign aimed at giving long-t...

warfarin1

•12 years ago

14 Replies

Does anyone else suffer with restless legs?

Sometimes mine are so bad it stop me sleeping. My legs feel heavy, hot, twitchy and like they are about explode. I am not sure if this is due to APS or my...

Sometimes mine are so bad it stop me sleeping. My legs feel heavy, hot, twitchy...

aps-and-ph-sufferer

•12 years ago

13 Replies

Hughes syndrome n migrains

i have hughes syndrome and very bad migrains makes me feel very unwell and weak, they last along time. how does it make you feel and how long does yours last.

i have hughes syndrome and very bad migrains makes me feel very unwell and weak,...

oleary

•12 years ago

18 Replies

Professor Graham Hughes' September blog

Coincidence! Two weeks ago there was a newspaper article about a young mother who had had a stroke. Perhaps because of one's own particular interest, I...

Coincidence! Two weeks ago there was a newspaper article about a young mother w...

Hidden

•12 years ago

4 Replies

Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

All posts for October 2012

Hello all !! new to the foundation but no stranger to aps, Any one suffer with pins n needles???

Have you ever taken probiotics?

Just wondering if anyone had developed a stutter that comes and goes?

Memory problems getting worse

APS and weight gain

GLUTEN TRIGGERS APS so says doctor......

Lupus Flare Up!

Does anyone know how to get a referral to see a doctor who specializes in Hughes Syndrome in or around the Toronto area?

Happy Halloween & appointments.

can anyone tell me what to expect on my first appt to St. Thomas' for aps please.Positive bloods and physical presentation.

Does any one have swelling on the spine/back problems

Thankful

Does anybody have Sjodrens?

Help!!!!

Anybody been diagnosed with MS and then found to have APS instead?

INR Self Monitoring

Private appointment with Prof Hughes

pregnancy induction

Coping with APS

My doctor has sent me for blood tests for Hughes are the tests at my local hospital as reliable as the London Clinic labs? Thanks :-)

Mouth

Artoliv

Eyesight issues

Is APS progressive?

ADVICE ON MIGRAINS AND SYMPTOMS.

on warfarin but INR changes daily - my ideal INR for me is3.5

AntiCoagulation Europe, part of the AntiCoagulation Self-monitoring Alliance Calls for self-testing monitors to be available on prescription

Does anyone else suffer with restless legs?

Hughes syndrome n migrains

Professor Graham Hughes' September blog

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