My doctor has sent me for blood tests for Hughes are the tests at my local hospital as reliable as the London Clinic labs? Thanks :-)

[Gibz]

[Hidden]

Yes, of course Just make sure they do all the tests which look for antiphospholipid antibodies:-

anticardiolipin

lupus anticoagulant

anti-beta2-glycoprotein1

Recent research found that not labs were doing the third test, but it is as important as the other two.

[Gibz in reply to Hidden]

Thanks Kate for your response and all the help you have given

I'm sure I will have answers soon .xxx

[Jade]

Well a relative of mine tested negative with the GP who he was testing for APS. With Prof Hughes at London Bridge he tested positive.

[Gibz in reply to Jade]

Ahhhh thanks so much I was hoping that wasn't the case !!!! But hope all will b well with mine not that I want to have a lamel upon me but I feel so unwell and am positive thet I've got Hughes ! We will see soon but if not going to plan I will b aske to b referred ( is that what your relative did?) thanks so much Jade x

[Gibz in reply to Jade]

SOrry I mean label !! Hehe my brain isn't working so well after my recent TIA xxx

[Jade in reply to Gibz]

Yes they did. They spent years going around the NHS and then decided it was time to bite the bullet and pay to see the Prof. The only problem with that is his waiting list is 5 months. But there is Dr Kamasta there who believes in seronegative too.

[Gibz in reply to Jade]

Thanks Jade .fingers crossed they will come back positive the sooner the better

[MaryF Administrator]

Yes I consistently test seronegative but my daughter a positive test result, and I have had clinical events. Mary F x

[Gibz in reply to MaryF]

Thanks Mary for your help I hope that my results will be sorted out soon I'm sure it will all be ok I have too many symptoms for them to b negative ( that's what I'm hoping so that I can start to b on meds to make me feel better !) xxx

[Jade]

Unfortunately most docs are not like our lovely prof. I am negative but have not been retested since diagnosis in 2004. I tend to keep my head down if I can. I have had so many bad experiences with the nay sayers I have lost count. I think a seronegative national campaign would be great but I can still see many docs not agreeing as the like positve bloods.

the prof created a lovey booklet for GP's to help them diagnose the 4 main autoimmune disorders and I took some back to mine who said 'oh they will probably go in the bin, nobody will look at them'.

I would give anything for a positive test, the only thing I remain posistve in is serious anaemia. can't seem to get a handle on that