Happy Halloween & appointments. - Hughes Syndrome A...

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Happy Halloween & appointments.

Suzypawz profile image
9 Replies

In advance me & Salem would like to say Happy Halloween to you all!! xx

I thought I would update you on what's been happenening, like many of us I have good days & feel like I can cope with everything thrown at me....recently I am struggling.......feel really tired all the while, no energy to do anything.......I'm still tryin to go to the the gym, but finding I'm almost falling off the machines rather than getting off them.....as it's the easiest option!!

All I want to do is sleep, inr keeps going low, migraines frequent too...........everything aching & weak.

I am finding it hard to find possitive things in anything? this is not me?? :(

ANYWAY.................

I have an appointment coming soon to see a doc' that is interested in APS in Derby soon, so maybe that will be good to talk to her & convenient as it's nearer to me than London incase of any complications whenever?? I'll see how it goes & let you know :) also got an appointment on the 7th Nov' to have a Hysteroscopy done to remove a large polyp & surface of the womb (sorry guys!) they say it's usually benign....but still worried as had the surface removed in the late 80's too :( not pleasant :(

Also got an appointment to talk to a dietician on the 8th Nov' about what vitamins we can have, what to avoid, etc, then I also have an appointment on the 13th Nov' to talk to a surgeon about the pains I still get in the 'ex gall bladder area', possibilities of it being S.O.D. seems like the main culprit....so we'll see what he thinks? then he may want to have a look in that area via keyhole?........I'll cross that bridge when I get to it!!

So many appointments!! but at last maybe getting somewhere!!

Well there you are, I'll let you know how I get on with them all, so if I'm not on here much I hope you will understand...............but I will find those 'big boots' & keep going & be there for you all whenever I can too, hugs to all :) xx

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Suzypawz profile image
Suzypawz
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9 Replies
jetjetjet profile image
jetjetjet

hay princess- sorry you are going to have to go thru all these unpleasent procedures-- but to get answers and eventually rid your self of all your problems. you are going in the right direction . you do deserve to feel much better. sorry no pic's sent-we had a extremely short season -not much color . havn't been out much either. things alot worse since wasp sting in mid august . but you get those big boots on -best foot forward -that eye of the tiger attitude. as i know you possess. and get yourself on the positive. have you readied your broom for halloween - as this is the time for all my witches of the midlands. wish you the most best of luck, with your procedures . keep me informed . you are in my head and heart- your biggest fan in the states - and maybe even the world!!!! :-). great pic of salem . be happy-- be safe- and most of all , just be YOU-----------------------------------------me.

jetjetjet profile image
jetjetjet

hay buddy just had a thought {brain cramps you know} i should of asked how did Salem get his name ???? ------------------ your foggy friend jet

Suzypawz profile image
Suzypawz

Thanks for your kind words as always bud :)

Salem got his name as it suited his personality...plus its Sabrina the withches cats name & I've always been called a witch!! In a nice way :)

Yes I shall kick my arse & be ok, you know I will ;)

GinaD profile image
GinaD

Thoughts are with you. Polyp removals are . . are. .. are--interesting? ( is that the word? ) good luck.

MaryF profile image
MaryFAdministrator

Hey you... best of luck with all this. Keep us posted. Mary F x

Zezes-nan profile image
Zezes-nan

Thinking of you and wishing you al the best

jessielou profile image
jessielou

Hi hon

I'm sorry you're feeling so poorly, how rubbish is this blooming illness. :-(

Must give you a ring, (please feel free to kick my arse to hon) if I forget, damn memory is appalling.

Sounds like docs doing something at last, maybe you'lle get some answers and help! Everything crossed hon!!

Take care love n hugs Sheena xxxxx :-) :-) :-)

Sorry you're going through such a difficult time :( I hope things start to improve and your appointments get less and less! Can I just check the APS specialist you are going to see in Derby is Dr Marian Regan? If it's someone else, please do let me know as we are building a database of specialists for the new website.

Chin up chicken :)

Kx

Suzypawz profile image
Suzypawz

Thanks all, I will let you know Kate, as soon as I recieve my appointment letter I'll put it on here her name.....they did tell me....but yep...it's gone!! :/

It was Dr. Regan but she has now passed it on to someone else now?...who is interested in APS....hopefully she'll know enough to be useful to me!! .............if not she can use me if needed so in the end she will have enough knowledge to help others.......

Thanks again all, I'm sure I'll be fine, just don't like hospitals, don't feel safe?? not too much confidence in them I suppose? :(

Hugs my lovelies xx

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