I am under assessment again since being placed in the support group in November 2011, this is really worrying in particular after suffering many TIAS daily, multiple small strokes culminating into a CVA larger stroke Feb 2011, not only will we all have to explain the APS disease itself and its everyday symptoms, how it it crucial that when we are out of therapyutic range and that we have to be closely monitured as APS patients (many of us) are told we are very hard to control, thus putting us at substantial risk. the biggest problem is getting the health professionals even the specialists to include this in a letter, How do we do this?. Any thoughts on looking for a welfare rights adviser to support the Hughes Syndrome Foundation as one whole. Good luck everyone I now know I am going need it!
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