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Hughes Syndrome APS Forum

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radio!!

Suzypawz profile image
8 Replies

I've just been told it's either on in 10 mins!!!! or this afternoon, just thought I'd let you know as I knew!! :) time to go red in the face!! :)

corbyradio.com/

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Suzypawz profile image
Suzypawz
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8 Replies
jetjetjet profile image
jetjetjet

you can get red in the face, as long as its not gaited-- how is the princess . hope your head feels ok . or do we include neck in this ? 5 hours difference ill have to get my brain in gear this morning - its early herebut had to get up - didnt want to miss our new born famous sugar coated celebrity --------- half awake me- still trying to get comfortalbe with my c-pap mask strapped to my head all nite ???? .

Suzypawz profile image
Suzypawz in reply to jetjetjet

That cant be nice :( I know a friend of mine has to have that too & he says its awkward to sleep with it on & is struggling with his :( hope you adapt with yours ok.

My head still feels heavy, neck & shoulders burning & arms aching, also knees now? I'm presuming I must have hit the floor with knees, hands, arms etc? I cant remember going down to the floor, just the knock on back of head then getting up from floor!

I'll be ok :)

I recorded it via phone, also they have told me they are going to send a link via email later too.....so looks like you'll all get to listen to itne way or another!

jetjetjet profile image
jetjetjet

i just e-mailed station< wanting time of air of show ? waiting for reply - it said leave phone contact # , think they will try the states ?? i dont think so!! i told them the world is awaiting -- SUZY PAWZ-- . if thet didnt know by that name , they do now !!!!! you can kick me but only after you lags better HA ---- fast one finger ---me

jetjetjet profile image
jetjetjet

seem to be having trouble this morning ? spelling- E s and Y s ???? o well its early, i know its no excuse, but it sounds good. o well on a more serious note, talked to nurse up in Lebanon, about surgery, they want to put one or maybe two filters in the vena cava { big blue ]. i being told this in it self is a major step. 4 dc s in on it now?they can be temporary or permanent ? not sure which way they plan to go, or whom is going to do this procedure, but it wont be dc Bernini who will be doing the hip , no answers just more mind boggling questions , boy my cup runith over, yesterday i was a wreck !!as with my problems they are both high risk for me. ill find out some more today, while i await our suzy appearence. thanks for listening --------------- shakey Pete

GinaD profile image
GinaD

Good to hear (is that the appropriate word on the internet? 'see' doesn't sound right either; 'note' doesn't convey enough personal involvement. We need a new word here! I'm not Shakespeare; anyone have any suggestions? But I digress . . )Good to see everyone's posts this morning. I share the joy of all doing better; I share the dismay of all not doing as well. This group has become important to me very fast. Thanks all. In some ethereal/internet/zen/spirit way we're all in this together!

Suzypawz profile image
Suzypawz in reply to GinaD

Yes, we are 1 big family :)

hope you are ok & happy at mo'. :)

jetjetjet profile image
jetjetjet

Suzy Suzy Suzy - how is our gal today , been thinking of you today , i think i listen to Corby as much my locals ?its on every time im in computer room !and i see that pic of you ,that one eye peeking thru your hair { great pic }.hope you improving didnt want to have to make swim , ocean cold you know,still no passport , still braincramps , havnt dug out scuba gear yet. did open up pool yesterday -water 46 degrees, burrrrrrr.need to get things done so Mary wont have to worry about them while i go thru the procedures, she will have enough to cope with . she has had her share for all of 2012!!! keep ,smiling ,laughing ,joking ,dancing and intermissioning, just be YOU. and keep messaging i still need my fixes.. --------- bfn-------------jumpy jet.

Suzypawz profile image
Suzypawz

I'm ok bud, still head wierd & nerves feel possibly squashed...but I'm assuming its the pressure of bruising in head? shoulders still hurt (have hot water bottle on them )

You musnt worry about me....no b****y panel is going to get the best of me!!! you make sure you're ok....you have enough on your plate & your friend Mary :(

Look after youself, I'll be fine.......I'm sure it will pass :)

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