sunscreen: As well as Hughes and fibro... - Hughes Syndrome A...

Hughes Syndrome APS Forum

10,356 members10,544 posts

sunscreen

panda60 profile image
6 Replies

As well as Hughes and fibro I have symptoms of lupus and Sjogrens so my skin is very sensitive and burns within minutes. I was using a sunscreen recommended by Prof Hughes (needless to say can't remember what it was called) but the higher protection was like a thick cream which took ages to put on. Then my chemist recommended Sun Sense ultra - factor 50 but a thin cream which can be put on in seconds and the bottle lasts for ages (in this country anyway!!!), and I am not allergic to it. Even better it is available on prescription.

Caroline

Written by
panda60 profile image
panda60
To view profiles and participate in discussions please or .
Read more about...
6 Replies
Lesley_D profile image
Lesley_D

Sounds like you hit lucky with your chemist Caroline. I have not had any problems being out in the sun to date, but this year will be my first while on all the new meds, so I guess will see what happens.

Good luck with your screen

:)

Lesley

panda60 profile image
panda60

I had a blood test recently and my vit d levels are very low so my GP has prescribed vit d supplements. I can sit in the sun for a short while, provided it's not too strong but apart from getting burned too much sun makes me feel very unwell.

paddyandlin profile image
paddyandlin

Caroline I am with you I use to have leather skin now burn like a crisp and gives me head aches joy, I hope the but d helps

Paddy

bevers1 profile image
bevers1

Hi Caroline52, I find just walking to the car can get me burnt if really sunny. I spent some time chattijng to a friend last week in the garden, when i went inside had a really red face and burnt, face now peeled completely. Not even a summer's day, I dread summer even with factor 50 on I burn. Take care x

christinebonner profile image
christinebonner

hi i burn very quick so i all ways use a baby sun tan lotion factor 50 which does help but i dont go out side if it very hot or if i do i have a brolly over my head and make sure i keep putting on the sun tan lotion, plus if i do go down the coast i put a t'shirt on over my swim suit so the back and neck dont burn

Sarita profile image
Sarita

I got very badly burned a week ago, the redness is still there. I was very sick 2 days after the exposure. Every year I forget how much I need the suncream. Stayed out of the sun this weekend.....the sun is suddenly sooo strong....take care everyone xx

You may also like...

APS specialist recommendation for London Bridge Hospital

enough to get my diagnosis some years ago by Prof Hughes 😀

I lost both my legs to Hughes Syndrome.

diagnosis of Hughes Syndrome. If the diagnosis had been made sooner, I would have been put on...

Appeal for APS specialists in the UK (sorry - rest of the world will follow at a later date!)

specialists from all over the UK to put into a directory on the new Hughes Syndrome Foundation...

Sero negative and feeling like a fraud.

muscle pain, miscarriages. Finally at the age of 44 I saw Prof Hughes who spotted I had livido too....

A new recommended INR?

the old APS/HUGHES website, read about recommended INR levels based on Professor Hughes research & I