I have a whole raft of tests being carried out over next couple of weeks to see if I have pulmonary hypertension. The consultant thinks I do. I know nothin about this condition and what questions I should be asked or information I should have.
If anyone has Hughes and has experience of developing pulmonary artery hypertension following PEs I'd be grateful for any advice.
Many thanks.
My pulmonary embolism was first diagnosed as pulonary artery hypertension.
I was only short of breath but very little pain. After extensive tests they found the embolism was the problem and I am on warfarin for life.
Hope this helps
I was diagnosed with multiple pulmonary embolisms a few years ago,i am now on warfarin for life.
Since having the blood clots i have chest pain everyday, and still cough up blood everyday for a few years doctors said it must just be scarring live with it! but earlier this year 1 was diagnosed with bronchiectasis.
i dont know if your condition is similar but i was referred to a physiotherapist to learn breathing exercises and now take long term antibiotics to prevent infection in the lungs.
I have just been tol d I have it found this info seems to tell you all you need to know and some you don't want to 
I have aps but think i have lupus
Brittle APS? 
Allset {I THINK HA HA }
Newly Diagnosed...I Think
