Drs think I have pulmonary hypertensi... - Hughes Syndrome A...

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Drs think I have pulmonary hypertension ...

travelnut profile image
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I have a whole raft of tests being carried out over next couple of weeks to see if I have pulmonary hypertension. The consultant thinks I do. I know nothin about this condition and what questions I should be asked or information I should have.

If anyone has Hughes and has experience of developing pulmonary artery hypertension following PEs I'd be grateful for any advice.

Many thanks.

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travelnut profile image
travelnut
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Hamy profile image
Hamy

My pulmonary embolism was first diagnosed as pulonary artery hypertension.

I was only short of breath but very little pain. After extensive tests they found the embolism was the problem and I am on warfarin for life.

Hope this helps

beckyb profile image
beckyb

I was diagnosed with multiple pulmonary embolisms a few years ago,i am now on warfarin for life.

Since having the blood clots i have chest pain everyday, and still cough up blood everyday for a few years doctors said it must just be scarring live with it! but earlier this year 1 was diagnosed with bronchiectasis.

i dont know if your condition is similar but i was referred to a physiotherapist to learn breathing exercises and now take long term antibiotics to prevent infection in the lungs.

Offcut profile image
Offcut

I have just been tol d I have it found this info seems to tell you all you need to know and some you don't want to :)

clevelandclinicmeded.com/me...

eurheartj.oxfordjournals.or...

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