I was told I had pregnancy Lupus 15 years ago when my daughter was born at 26 weeks and died 2 weeks later, in which time I had a clot on my lung. I've had treatment and gone on to have 2 children, but after having tests for problems lately the doctor informed me that I had hughes syndrome. I was told when my daughter died that I only have problems in pregnancy and that I'm high risk of a clot and that's it, I've only recently discovered that I have a condition that will stay with me for the rest of my life. The problem is I can't get information from anyone medical in my area, they don't seem to be concerned at all, they said that I should consider taking aspirin and that's it. I have been suffering with symtoms for years which I think are linked and no one seems bothered, does anyone know where I could get some more information?
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