since last blog i am currently on day release from hospital, I got admitted thursday via gp referral, i asked the receptionist at my surgery if the optician had written to the practice re what he thought might be causing my eye pain. She said why dont you see the locum doctor she has just had a cancellation so i did. After her trying to check behind my eyes and taking my APS history seriously - phew! (shame she's not a partner there) - she said i was to go to the assessment ward.
I went in at 12 mid-day to the medical Ward. I had a thorough examination by the medical staff and several hours later saw a consultant. Had CT angio at 2000hrs which was reported as having artefact & needed the opinion of the neuro radiologist who needed to compare it with previous scans i had back in 1990. So i was admitted with a view of further investigations, warfarin omitted just in case lumbar puncture needed.
CTA showed no clots but the team including the consultant couldnt see behind my discs in my eyes clearly esp the left one. Hubby called into boots got verbal message optician thought i had possible branch occlusion. So no LP needed but the team manage to organise late appointment to see opthalmologist in the A&E dept in another hospital hubby drove me so this is now friday 5.30pm.
After thorough check of my eyes i was pleased to find out no evidence of new clots & discs fine. The opthamologist was impressed by the opticians findings and in deed i had a branch occlusion but it was not recent. My headache/pain in left eye was now only a dull feeling the worst of the pain, nausea, poor concentration visual disturbance was over 2 weeks ago when my inr was 1.9 following week went to 2.2 & when still present when inr was 2.5 thats when i saw GP. The opthalmologist believed something had happened in previous weeks. She agreed when i mentioned the theory Kay Thackery discusses in her book, re micro clots. I had a similar episode in march when my INR was 1.4 then i was more compromised then as also profoundly fatigue and anxious as difficulty articulating my words but sadly my GP i saw thought 1.4 was adequate anti coagulation & said i was depressed so it wasnt taken seriously by him.
I just assumed i would be discharged sat am as no new clots seen and headache / pain only dull now so i was all packed ready for home. Doctor that reviewed me was not happy to discharge me as nil said in notes about discharge but to discuss with my rheumatologist on tuesday and she also agreed with the theory of micro clots so i dont feel like i have wasted anyones time - just relieved!! My recent ACL antibodies are very high thus this also fits with the theory as had them checked in my 30's when target inr got reduced from 3.5 to 2.5 at my request as i felt well and was worried of having an inr 3.5 (had major menstral probs - mirena and lower inr target then helped) i barely had migraine type headache or problems to the extent i got now with fatigue complicated with dx fibromyalgia in march. This to my mind may expain why i got worse memory problems, foggy brain and so forgetful, i get flustered easily as so scared of forgetting something in work - i certainly cant multi task like i was doing in my 30's when i enjoyed the challenge of stress in the work place.
I wait in anticipation now as to what the consultant makes of it on tuesday - and if indeed she believes the theory of micro clots and hopefully will discuss and get my target inr higher than 2.5 now or consider adding aspirin to see if this helps the cognitive issues i feel are much more noticable.
will blog again soon kathy xxx