Waiting times in hospital dreadful for mum

[Cinderella80]

Hi friends hope you are all keeping strong and hugs to you all. I know I need a big hug. I just wanted to say that mum is due cataracts surgery now in February. Before then we have been going to hospital so they can take images of her eyes. The appointments have been for half ten and eleven in the mornings. I have to get mum up at six so I can take her to the bathroom give her breakfast her meds then get her ready. That's when we can just about make it to hospital. The thing is we have been there for around four hours. They were prodding her trying to take images of her eyes. Trying to turn her head, telling her to look right or left. Which she obviously cannot. Even when I try to explain about mums disease they just ignore. She gets so exhausted and just sitting in the wheelchair for so long takes its toll. She can't even sit on the sofa for so long. They only managed to take a image of one eye. We had to go again and she was exhausted once again. After that it's hard to feed her. I'm dreading the cataract surgery because it will be a long waiting time once again and I don't know what new challenge I will have to face by February as this disease is so unpredictable. I understand they are extremely busy but they should think about the poor people who can't sit for so long in a wheelchair and has a awful disease such as this. If any of you have been going through the same ordeals big hugs and love to you all. It's so tough for the person with PSP and the people caring for them.

[Scottoppy]

Big Hugs and Love from Yorkshire XXXX

[LFG3]

I would think long and hard if she really needs the cataract surgery with this disease. I wouldn't put my husband through it. They lose so much of their vision anyways with this disease, why bother her with this surgery? Even after the surgery she probably will have poor vision. I think it's about giving them a good quality of life and keeping them comfortable for the short time they have left. Just my opinion, but it's worth some thought.

[Stephanielayell82]

Why put her through it? With this disease it will most likely have little improvement if any at all. I'm not trying to be negative at all by saying this. If the surgeon is uneducated about this disease. They are most likely selling your Mum false Hope's of making improvements on her vision. Best wishes and big hugs to you

[T-val]

I cancelled my mother's cataract surgery as couldn't put her through that and would not have seen much improvement. Upon explaining this to opthamology, they also agreed to cancel.

[bichonbear1]

I agree with what others have said. If it was me I wouldn’t put my mum through any surgery or procedure. The stress would be too much and counter productive.

[Poppypolo]

I agree it is too stressful for the patient, my husband has basal cancer on his face to get him to hospital it has to be an ambulance as he can not move now or talk but the department keep on and on he has got to be seen, I have refused as the stress for him to go and wait around is not fair we will just deal with cream from our doctor.