Final stage: My wife passed last week... - PSP Association

PSP Association

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Final stage


My wife passed last week...thought i would tell her last stage

* bed bound for last month (October)

* loss control of bowels (3 weeks ago)

* right arm & hand only functional limb (2weeks)nal

* loose of appetite (2 weeks)

* swallowing problems (10days)

* clenched mouth..refused to eat or drink (3 days)

* death (zero days)

Before PSP = 15 lbs. At death about 55 lbs

I believe final stage may be different for each PSP case

24 Replies

Her before weight was 45 lbs

And......This site not a user friendly experience

vecon in reply to vecon

Before weight = 145lbs... yeaaaaàa I hope

Sorry for your loss, thinking about you at this sad time. Yvonne xxx

I’m so sorry for your loss and for the arduous stage you and she have gone through. Thank you for sharing as this information will no doubt be helpful to me and to others as our loved ones come to the end of their illness.

I’m sorry for your loss. Thank you for sharing what must have been difficult to write, although so sad , it is helpful to read as all the information about the last stage is so confusing. I hope you manage to find some peace in the coming weeks and months.

Helen x

I am so sorry for your loss. Look after yourself now and grieve at your own pace and take your time


so Sorry for your loss. Love to you and your family. Take care of yourself.

This experience must have been very distressing for you to go through. Thank you for sharing what must be a difficult account to write in an effort to support others. I hope the good memories of your loved one soon fill your thoughts and bring you a peaceful closure.

Thanks for sharing.

A big hug.


Big hugs to you xx

I am sorry to learn of your wife's passing. Thank you for sharing this especially at an emotionally difficult time for you. Take care.

So sorry for your loss. Thank you for sharing your difficult experience x

My husband is reaching his end days . Barely eating .. maybe a couple of teaspoons of puréed food... barely drinking ... stays in bed most days in a strange shut down state. So awful seeing such prolonged suffering . How much longer will it go on ... no one can say ... as you say everyone is different , but your text strikes a chord

Thinking of you at this difficult time, Hope you have people to support you. Take care & be kind to yourself, you obviously gave a lot to look after your wife, now you need to look after you. xxx

I am so sorry for your loss.

Thank you for sharing at this difficult time. Your info helps us, to be prepared for this awful future

Take care of yourself.

Big hugs

Elena F

So very sorry for your loss. Thank you for sharing - it takes courage.

Tim X


My heart goes out to you and your family. I know from personal experience that there is nothing I can say, however I hope you see from these replies that you are thought of and concerned about. My thoughts and prayers of comfort, strength, and wisdom in this difficult time go out to you.

Every stage of PSP is different. While your wife is not longer suffering in this stage, it is no easier on you. Care for yourself now. The care you have provided for your wife has been growing over the years and all consuming at the end. It was difficult for me to make that transition from being a caregiver to not.


So very sorry for your loss; thank you for sharing. My heart breaks for you. Xx Kim

I'm so sorry for your loss. It brought back sad memories. I know it must have been difficult to write, but will be helpful for others. Facing the unknown is so hard. Be sure to take care of yourself now and hold your happy memories close. They will be a comfort.


Sorry for your loss. Thank you for sharing in this difficult time. Take care of yourself. It seems weird to say but sometimes we forget to do that in stressful times.


My condolences to you and your family on the loss of your wife. Take comfort from the simple fact that she is now free from the damned disease and thanks for sharing this with us. I fear that my wife is about a year or so behind yours in her progression, so what you share here with us is quite helpful to me.

Take care and be kind to yourself.



So sorry for the loss of your dear wife. The final stage is hard to go through, I was there this time last year.

Your wife is now free and her whole beautiful self again, PSP no longer has her in its evil grasp.

Now please take time to care for yourself and grieve in your own way, take one day at a time.

Lots of love, Nanny857xx

Sending gentle hugs... Granni B

Thank you for sharing your experience. So sorry for your loss. Sending warm hugs.

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