“Even though I was young, I knew my grandmother had been showing signs that something wasn’t quite right a few years before she received her diagnosis of PSP. She’d been struggling with her balance and would regularly stutter.
“The diagnosis of PSP came in 2010 after her symptoms began to progress further and she was referred to a specialist. Unfortunately, by that point, my grandmother’s symptoms were progressing fairly
rapidly.
"I knew as a family we struggled with the fact PSP is so unknown and even the doctors and carers had little knowledge of the disease. We found PSPA’s website and magazine helpful and it led to me signing up to run the London Marathon in 2021 on behalf of PSPA.
“As I progressed through education and chose Biochemistry for my degree at the University of Exeter, the lack of knowledge and understanding of PSP led to my decision to chose the focus for my dissertation.
"“I was pleased to gain a first for my dissertation and the work I completed for this project inspired me to apply for a Master degree in Immunity and Infection at UCL. I’m also hoping to gain some research work experience to help progress my understanding of PSP and research as a career."
Read Imogen Tyler's experience of PSP in full by signing up to receive PSPA Matters by post or email at pspassociation.org.uk/get-i...
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