Leaving body to research

[Dazzle1659]

I'm new here after my husbands diagnosis. He has asked if it's possible to leave his brain/body to science, preferably for PSP research. We are well away from this point, but we are due to move back to UK in a few weeks and are going to set up living wills, power of attorney etc and would like to arrange this at the same time. Does anyone know how we go about it please?

[redkilt]

The form is entitled Patient Post Mortem Consent Form. We obtained ours through NHS (nhshealthquality.org might be a useful site for you). I was very moved when I knew this was possible . . . and offers a light for the future for sufferers of this terrible disease.

[Dazzle1659 in reply to redkilt]

My stepson lost his life to brain cancer a few years ago, and he left his body to science. He was then cremated and returned to his mum within 3 years as stated in the documents. My husband wants his to be left to research for this hideous disease

[CathyHide]

My husband passed away from PSP two years ago and he left his brain to Brain Research. You do need to arrange it and have appropriate forms signed. The Brain Research arranged for the collection of his body from home took him to the hospital to remove the brain prior to the body going to the undertakers. I have received a number of letters telling me the research that has been undertaken. I have also left my brain to research as they require brains without disease as well.

[Sunsetboulevard]

My husband signed a form at the university hospital in London , donating his bRain to research . I’ve been told that none are being received at the moment however owing to coronavirus .

[AliBee1]

Hi. My husband donated his brain to the Queen Square Brain Bank for Neurological Disorders at UCL London. Unlike your stepson his brain was not returned to me but they learnt a lot from it which he would have been very happy about. It was very well organised even though we live in the South West. Lynn Haddon was the administrator at the time and she was lovely to speak with. Tel. [phone] email: [e-mail]. She would be able to supply you with up to date information. The PSP association also did a very good article on brain donation in 2017. You can obtain a copy from them by emailing: [e-mail]. Good luck with your move back to the UK and for the future. AliBee x

[Uscarol]

My husband will leave his brain as he is involved in a longitudinal study of PSP. Ask your neuro if he could identify where it would be most efficacious. Our study is with a university medical school.