Goodbye my dear husband: Hello to all! I’ve... - PSP Association

PSP Association

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Goodbye my dear husband


Hello to all!

I’ve been following this site for a couple of years now and have gained so much valuable knowledge from all of you.

My very wonderful, Bob, passed away this last Sat 10/10 from PSP.he was a very strong man both physically and mentally. He didn’t die from pneumonia but rather his PSP caused a paralytic ileus which essentially results in your stomach/intestines

Slowing or stopping. It was one of the most horrible things I’ve witnessed as a registered nurse but I would like you all to know that I’m so happy he’s no longer suffering in his ravaged body. He is now FREE!

I want to thank you all for sharing your stories, pictures, info and valuable thoughts!

Much, much love and strength to all of you.



30 Replies

So sorry to hear that your husband as passed away. May he rest in peace Finally free from this evil disease.

Your comment about his intestines interests me. My Mum who has Alzheimer's, the other end of the spectrum of PSP, is having a lot of problems in this way, so going to google this condition to find out more. I know Steve suffered badly with his bowels, for at least two years, like you say, it's cruel beyond belief.

Look after yourself now, the next part of the PSP journey is very slow and extremely tiring, with no short cuts. Use your caring skills on yourself now.

Sending very large hug and much love

Lots of love


Bettina545 in reply to Heady

Well it has to do with chronic constipation that worsens year after year. He really suffered especially the last year last month last 3 days. I was super horrified even as an RN. I have cried but honestly I’m so glad he’s in Heaven and no longer suffering.

Much love to you!



Heady in reply to Bettina545

Betty, those of us this side of the journey feel this way. It’s only three months till the forth anniversary of Steve dying and I still feel the relief it’s over. Of course I miss him like crazy,but during his journey, I alway said I wanted to take his pain. Now I am doing so and I don’t regret a second of it.

Lots of love


Bettina545 in reply to Heady


Dear Betty,

I’m so very sorry for your loss. No matter how much we want them to be free, there’s no denying the huge huge hole that leaves in our life. I hope the knowledge that he is free is a great comfort to you for a long long time.

Peace ❤️❤️

Anne G.

A million thanks! Agree!

Hi Anne!

Nice to know you are well.

My sister is still fighting PSP. In August she wins against COVID 19.

She is now in a home care and tries to be happy every day.

She thanks to feel the warm of the Sun rays daily, although she is blind now.

We, the carers are still supporting our loved ones.

I am a widowed, close the hole took me more than 2 years, but his memory always returns. We need to look only to the future and fill the ours with thinks to do, with new projects.

Big hug

Wise advice, Elena 😊

Hugs to you ❤️

Anne G

Sorry for your loss of your husband.

So sorry for your loss!!

May He Rest In Peace!!

Oh Betty

So sorry to read this. But as you so rightly say, he is FREE. Take care of yourself the next part of your journey starts now.



So sorry for your loss, PSP is such a cruel disease, relief and sadness go hand in hand

Take care off yourself as you start this new journey

Love Tippy

I am so very sorry for your loss, but, I too completely understand the FREEDOM that we know he has now. Blessings and comfort to you. Xx Kim

So sorry to hear from your loss.

Now you start a new journey, take care of your self now and build your own story.

Big, big hug.


So sorry big hugs Maggie xxx

I am so sorry for your loss. It’s a difficult time for you and your family. Sending warm hugs to you .

Bettina, it is a complicated time, isn't it? Relief that the nightmare of his suffering is over, but such sadness now, that his face, his smile, his close-to-you love isn't there. He must have been a very brave man and as ill as he was, a marvelous part of your life. I am so sorry for your loss. I am 9 weeks since my own husband passed and have found that rebuilding a life for myself that is stronger because of his love, life and memories but is so, so different from the life we knew together is a day-to-day "project."



So sorry, thinking of you. xxx

I am so sad for you, hoping your memories of a life together will carry you through this very hard time...hugs Liz

I am so sorry for your loss but you are taking comfort in knowing Bob is at peace and free from this horrible disease.

Only those dealing with this disease know the heartache we see each day that our loved one has to endure. Our mourning starts well before they pass.

I wish you peace and only good memories of the happy times you shared together. ❤

I'm so very sorry for your loss. Hugs and prayers.



So sorry for your loss and the awful struggles that resulted in Bob's passing. Was there any treatment for the complications of his bowels? Life can be so cruel. Take care of yourself as best you can at this difficult time. HUGS!!

So sorry for your loss but glad he is no longer suffering x

I am so very sorry for your loss. My husband passed at the end of August. I am heartbroken at my loss, but grateful for his release. My thoughts and prayers are with you.


My condolences to you and your family. The loss of your husband must weigh heavily.

Be glad that his suffering is over, and take care of yourself now.

God bless.


So sorry for your loss xx

Sorry for your loss xxx

My husband died of PSP almost three years ago. You will be glad that your husband is free from the scourge of PSP, but grief will be a part of your life from now on. Go with it. If you feel like crying/ shouting , or doing whatever things that let it out, do it. Talk about it, but do not question the way you did things, that is of no use to you now. As Heady said, take care of yourself and be kind to yourself.

Sending my very best wishes , with love. Rx

Bettina545 in reply to Robbo1

Thank you so very much for your kindness!

It’s so comforting to hear from people who have been through the PSP journey.

I’m sad but so happy for him that he’s at peace. No one knows this horrific disease unless they’ve witnessed it......

It was just unbelievable at the end....

Hugs and sincere condolences to you and your family as you begin the process of adjusting to the loss of your husband. PSP is a difficult and harsh path to traverse with someone you love so deeply. It definitely is time for you to be gentle with yourself as you move through the next month's. ❤


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