I’ve been following this site for a couple of years now and have gained so much valuable knowledge from all of you.
My very wonderful, Bob, passed away this last Sat 10/10 from PSP.he was a very strong man both physically and mentally. He didn’t die from pneumonia but rather his PSP caused a paralytic ileus which essentially results in your stomach/intestines
Slowing or stopping. It was one of the most horrible things I’ve witnessed as a registered nurse but I would like you all to know that I’m so happy he’s no longer suffering in his ravaged body. He is now FREE!
I want to thank you all for sharing your stories, pictures, info and valuable thoughts!
Much, much love and strength to all of you.
Betty
Xx
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Bettina545
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So sorry to hear that your husband as passed away. May he rest in peace Finally free from this evil disease.
Your comment about his intestines interests me. My Mum who has Alzheimer's, the other end of the spectrum of PSP, is having a lot of problems in this way, so going to google this condition to find out more. I know Steve suffered badly with his bowels, for at least two years, like you say, it's cruel beyond belief.
Look after yourself now, the next part of the PSP journey is very slow and extremely tiring, with no short cuts. Use your caring skills on yourself now.
Well it has to do with chronic constipation that worsens year after year. He really suffered especially the last year last month last 3 days. I was super horrified even as an RN. I have cried but honestly I’m so glad he’s in Heaven and no longer suffering.
Betty, those of us this side of the journey feel this way. It’s only three months till the forth anniversary of Steve dying and I still feel the relief it’s over. Of course I miss him like crazy,but during his journey, I alway said I wanted to take his pain. Now I am doing so and I don’t regret a second of it.
I’m so very sorry for your loss. No matter how much we want them to be free, there’s no denying the huge huge hole that leaves in our life. I hope the knowledge that he is free is a great comfort to you for a long long time.
My sister is still fighting PSP. In August she wins against COVID 19.
She is now in a home care and tries to be happy every day.
She thanks to feel the warm of the Sun rays daily, although she is blind now.
We, the carers are still supporting our loved ones.
I am a widowed, close the hole took me more than 2 years, but his memory always returns. We need to look only to the future and fill the ours with thinks to do, with new projects.
Bettina, it is a complicated time, isn't it? Relief that the nightmare of his suffering is over, but such sadness now, that his face, his smile, his close-to-you love isn't there. He must have been a very brave man and as ill as he was, a marvelous part of your life. I am so sorry for your loss. I am 9 weeks since my own husband passed and have found that rebuilding a life for myself that is stronger because of his love, life and memories but is so, so different from the life we knew together is a day-to-day "project."
So sorry for your loss and the awful struggles that resulted in Bob's passing. Was there any treatment for the complications of his bowels? Life can be so cruel. Take care of yourself as best you can at this difficult time. HUGS!!
I am so very sorry for your loss. My husband passed at the end of August. I am heartbroken at my loss, but grateful for his release. My thoughts and prayers are with you.
My husband died of PSP almost three years ago. You will be glad that your husband is free from the scourge of PSP, but grief will be a part of your life from now on. Go with it. If you feel like crying/ shouting , or doing whatever things that let it out, do it. Talk about it, but do not question the way you did things, that is of no use to you now. As Heady said, take care of yourself and be kind to yourself.
Hugs and sincere condolences to you and your family as you begin the process of adjusting to the loss of your husband. PSP is a difficult and harsh path to traverse with someone you love so deeply. It definitely is time for you to be gentle with yourself as you move through the next month's. ❤
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