My PSP was diagnosed 2018.
No advice received from the medics, but I have a good GP.
Immediately I started on personal research and a regime of complementary therapies (Cranial work has been brilliantly successful) plus targeted exercises (Pilates, etc), plus specific diet (organic Mediterranean), plus Supplements.
MRI after one year was 'stable'.
First symptoms seemed very similar to those following a severe accident in 1964 when my pituitary was knocked out for 5 weeks. I believe that's when it all started, but there is no proof, so medics do not accept it!
I am 78, and my walking seems a bit more wobbly these days.
I am taking part in the UCL study of PSP, delayed but now just starting.
I keep a 'PSP diary' and have written a 3-page summary of my course of action taken. I hope this will be of interest/use to other PSP'ers, Parkinsonians, etc, so please ask me for an online copy.
Best wishes to all! TIM