Liberating Research are conducting a small study aiming to improve their understanding PSP & CBD and their impact on the daily lives of the individual affected and their carer, to help implement better support measures in the future.
To do this, Liberating Research would like to interview six patients and carers/family members together on one hour long call. In addition, there would be a short diary for the carer/family member to complete, each day for a week.
Costs for your time would be paid as well as 10% donated to PSPA for our support of the study.
Just so that everyone is clear, this survey is MARKET research not SCIENTIFIC research. That means the information is just going to be used by the company commissioning it for their own commercial purposes. The results won't be published as a scientific paper. I am not trying to dissuade you. You may think this is fine if it helps a company that provides a drug, device or service to do its job better, as long as you understand and are comfortable with that purpose. And it does mean a % to PSPA which might be enough reason for you.
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Brain studies
A new beginning I did not want
this one is for all the family members and carers!!
