Hi everyone,
I lost my hubby to PSP nearly 2.5 years ago now, and although I haven't been as active on the forum as I needed to 'get away' from PSP for a while, I still visit here from time to time. One of the things that struck me again today, was how isolated some people are. I'm in South Africa where PSP is a very rare thing indeed, and the only support I found was via this group. However, I was fortunate to attend a PSP support group in the UK and also to visit with the marvellous Anne, and I must confess to being more than a little jealous to read about the London meet-ups. There is nothing like being able to talk to someone who just 'gets' it.
There are so many carers who are not fortunate to be close to a major centre with more carers, or who can't arrange to take time out to travel to a meet up. I can't recall if anyone has ever suggested a virtual meet up on this forum? I know we attempted to have everyone do a simultaneous log-in and chat, but I mean a virtual dial-in. Has this been attempted? Is it something people would be interested in? I'd be happy to look into what might be available and set something up to try it out?
Let me know
Sharon