Posts - PSP Association | HealthUnlocked

PSP Association

9,604 members•11,541 posts

All posts for September 2018

Death in a heartbeat

I don't know why I am here tonight, I've had some wine and need to share. Today was the first day I did NOT want to visit my husband. My son and his partner of...

I don't know why I am here tonight, I've had some wine and need to share. Today ...

D0ttieL0ttie

•6 years ago

25 Replies

My beautiful momma is gone

Just gonn let everyone know that this wicked disease has won again!! It took the most precious, loving ,caring, beautiful, gift from me Sunday sep 16. This...

Just gonn let everyone know that this wicked disease has won again!! It took th...

Reidallison

•6 years ago

29 Replies

Stress stress stress

Been thinking tonight about bloody psp, now I am sitting here feeling stressed out, I was clearing out some old paper work, brought back so many memories, old...

Been thinking tonight about bloody psp, now I am sitting here feeling stressed o...

Yvonneandgeorge

•6 years ago

77 Replies

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Depression with Tau Protein

Did anyone see a segment on 60 minutes tonight in the US. It was discussing a study done regarding g Veterans and CTE. They seem to have found a reliable way...

Did anyone see a segment on 60 minutes tonight in the US. It was discussing a st...

Karynleitner

•6 years ago

38 Replies

Thinking another Step down

Hospice called me Friday morning because Dad felt ill, nausea, didn't want food or drink, very pale and a pressure sore on his backside that was about ready to...

Hospice called me Friday morning because Dad felt ill, nausea, didn't want food ...

Dadshelper

•6 years ago

6 Replies

Brass Monkey

It was lovely to meet up with everyone today and I came away feeling a lot happier talking to people who understand the disease. Thank you Amanda for...

It was lovely to meet up with everyone today and I came away feeling a lot happ...

Dickenson2

•6 years ago

10 Replies

Difficult question about the end

Not really sure how to ask this because I know everyone's experience and the progression of PSP is so different, but just wonder if anyone has experience of...

Not really sure how to ask this because I know everyone's experience and the pro...

mattnkatsmum1

•6 years ago

38 Replies

my hero Geoff

its been a while since I came on site its just over three months since Geoff died and I am using a bereavement councillor shes very good and I talk my head...

its been a while since I came on site its just over three months since Geoff die...

wheelrace

•6 years ago

13 Replies

First Post

My wife was diagnosed two years ago. We had been managing just about but a recent fall and resulting hip fracture has brought home the reality of what we are...

My wife was diagnosed two years ago. We had been managing just about but a recen...

tettakali

•6 years ago

8 Replies

Having a tough day

Hi, Well my husband who has CBD fell last week and had to go to ER by ambulance. They thought he broke his arm and put it in a splint. Very swollen and black...

Hi, Well my husband who has CBD fell last week and had to go to ER by ambulance....

Patmimi

•6 years ago

8 Replies

I am new here.

I am carer for my husband diagnosed 2012 with PSP although we feel he had it a few years prior, I was too scared at first to read your comments page, but now...

I am carer for my husband diagnosed 2012 with PSP although we feel he had it a f...

Servena03

•6 years ago

12 Replies

Great North Run - I Did It!

proof Is in the pudding... or at least the photo. This is me at the Great North Run, proudly resplendent in my PSPA running top. (Last event before the great...

proof Is in the pudding... or at least the photo. This is me at the Great North ...

Ratcliffe

•6 years ago

19 Replies

Confused

My husband was taken by ambulance last week where he recovered from a ten hour "pseudo-seizure". It started with me wrestling to keep him from gouging and...

My husband was taken by ambulance last week where he recovered from a ten hour "...

-shelly26-

•6 years ago

18 Replies

Funny in retrospect

On Sunday Mary was very lethargic and unresponsive. She has been prescribed Bacalofen to try and reduce her stiffness (doesn't work yet). The carers came in to...

On Sunday Mary was very lethargic and unresponsive. She has been prescribed Baca...

Willow_rob

•6 years ago

5 Replies

Natty Bibs

Thought I would share this website with you www.bibbleplus.co.uk/ they make adult bibs that look more like scarves than bibs (they also do more traditional...

Thought I would share this website with you www.bibbleplus.co.uk/ they make adul...

AJK2001

•6 years ago

5 Replies

Feeling sad

Hello, This is my first time posting. My mum, 72 was diagnosed with CBD 18 months ago and we recently made the decision for her to go into a nursing home. Her...

Hello, This is my first time posting. My mum, 72 was diagnosed with CBD 18 mont...

GJBox

•6 years ago

7 Replies

I'm still here

Hello folks A few kind folk have pm'd me to ask if I am OK and why I have disapeared from the forum. I'm still here, but I need to see Liz every day at the...

Hello folks A few kind folk have pm'd me to ask if I am OK and why I have disape...

Kevin_1

•6 years ago

32 Replies

A Little Success!

Hi, I am happy to report this bit of success. My husband saw his new Neurologist last week. He very compassionately explained facts about PSP, prescribed a...

Hi, I am happy to report this bit of success. My husband saw his new Neurologis...

Boobe

•6 years ago

13 Replies

New eye developments

It’s been an “interesting ‘ few weeks to say the least. I was diagnosed with PSP in 2014 (I think). Other than being housebound, using a U-Step walker, not...

It’s been an “interesting ‘ few weeks to say the least. I was diagnosed with PSP...

GmaDeb

•6 years ago

19 Replies

Any idea what’s going on?

Mums been in Hospital now for just over two weeks, on NBM due to her choking. She has had the runs for over a week (think due to her feed and antibiotics) last...

Mums been in Hospital now for just over two weeks, on NBM due to her choking. Sh...

Sarah1972

•6 years ago

30 Replies

Struggling with CBD

My Mum was diagnosed in October 2015 and its been awful. First symptoms approx 6 months prior whilst still working etc. My stepdad was her main carer since...

My Mum was diagnosed in October 2015 and its been awful. First symptoms approx 6...

eurolynch

•6 years ago

6 Replies

Is this the begining?

Yesterday my FIL (who is still wobbly but mobile) was sat out side he had not been "feeling right" since waking. Quite suddenly he felt extremly peculiar. He...

Yesterday my FIL (who is still wobbly but mobile) was sat out side he had not be...

Pooches

•6 years ago

36 Replies

CAREGIVER Looking for a Job

I’m back to London. I have many years of experience and excellent references. If anyone in this city are looking for a Caregiver for you love one please...

I’m back to London. I have many years of experience and excellent references. If...

BABALINDA

•6 years ago

3 Replies

CBD doctors visit

Today we went to see the Doctor. We arrived armed and somewhat dangerous. The pleasantries out of the way I started with my list of demands. Agenda eye drops,...

Today we went to see the Doctor. We arrived armed and somewhat dangerous. The pl...

Pooches

•6 years ago

21 Replies

Read a book

Its' National Read a Book Day... I have one in mind - The PSP Chronicles. Safer than riding a horse (: Tim

Its' National Read a Book Day... I have one in mind - The PSP Chronicles. Safer ...

daddyt

•6 years ago

13 Replies

Refusal of PEG

Mum is still in hospital and will have one more check on her swallowing ability and it will be decided wether or not she needs PEG. If this is the case mum...

Mum is still in hospital and will have one more check on her swallowing ability ...

Sarah1972

•6 years ago

24 Replies

Trying to be patient

I know it is the illness but I find the lack of conversation drives me mad.It feels so lonely.We used to have such fun and he seems to have none left.

I know it is the illness but I find the lack of conversation drives me mad.It fe...

Westerngirl

•6 years ago

30 Replies

Another unexplained fever.

unexplained fevers 98F to 102.8. (FUO - fever unknown orig) This is the second time that C. got a low grade fever. Last time (2 weeks ago?) he was given an...

unexplained fevers 98F to 102.8. (FUO - fever unknown orig) This is the second ...

hubetsy

•6 years ago

16 Replies

A picture to Moots

An idea of adapted WC. Shower is very simple and very useful. Hugs. Luis

LuisRodicioRodicio

•6 years ago

7 Replies

On the lighter side...

Well, I'm at the emergency room 😩. This day has kinda taken a turn for the worst. I got the chance to go horse back riding, something I haven't done in a...

Well, I'm at the emergency room 😩. This day has kinda taken a turn for the wors...

daddyt

•6 years ago

39 Replies

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Posts - PSP Association | HealthUnlocked

PSP Association

All posts for September 2018

Death in a heartbeat

My beautiful momma is gone

Stress stress stress

Depression with Tau Protein

Thinking another Step down

Brass Monkey

Difficult question about the end

my hero Geoff

First Post

Having a tough day

I am new here.

Great North Run - I Did It!

Confused

Funny in retrospect

Natty Bibs

Feeling sad

I'm still here

A Little Success!

New eye developments

Any idea what’s going on?

Struggling with CBD

Is this the begining?

CAREGIVER Looking for a Job

CBD doctors visit

Read a book

Refusal of PEG

Trying to be patient

Another unexplained fever.

A picture to Moots

On the lighter side...

Search posts

Latest poll

What are your main concerns as a carer?

Topics

Archive