Just gonn let everyone know that this wicked disease has won again!! It took the most precious, loving ,caring, beautiful, gift from me Sunday sep 16. This horrid disease cheated my mom out of her life!! You can probably tell I am not dealing with this very well.. I am extremely angry!! I did not want my poor sweet momma to suffer, but she suffered for 4 yrs because of psp ,that is 4 years too many!! She was the matriarch of our whole family since my dad passed in 2009. And we all needed her!! Why? Why? She did not deserve this!! I'm sorry I know this is a support group, but I'm telling it like it is!!! I've never felt so helpless in my life!! I've never witnessed anything so terrible!! Why? My mom weighed 68 lb when she passed !! Is this even humane? I am done with this psp bs.. I hope I never here of it again!! Good luck to you all., your gonna need it!!