A Little Success!: Hi, I am happy to report... - PSP Association

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A Little Success!

Boobe profile image
13 Replies

Hi,

I am happy to report this bit of success. My husband saw his new Neurologist last week. He very compassionately explained facts about PSP, prescribed a walker, told my husband that we can only try to keep him safe from falls and deal with other things as they come up. He also told him that it would be better to stop working. On his written orders, he wrote, NO DRIVING.

My husband tried to convince the Dr. that he could still safely drive, that's when the Dr. put it in writing. Okay, so, he still wanted to work. That means I have to take him 8 miles away at 10:pm, then pick him up at when he gets off at 7 am. That might seem like a piece of cake to some but for me, very difficult, physically and emotionally. Well, the first morning I went to get him, he told me on the way home that he gave notice on his job that he would be leaving for medical reasons.

It was such a battle trying to convince him to stop working and stop driving. Now I can look forward to him driving me crazy around the house and I suppose I should appreciate it too.

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Boobe profile image
Boobe
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13 Replies
honjen43 profile image
honjen43

Well done! Now you don't have to nag him to stop working or driving!

Know what you mean about driving you nuts at home!

Suggest you try and persuade him you need to put both your affairs in order first.

Then make that bucket list and go and make some good memories together!! Certainly something to look forward to!

Hugs

Jen xxx

Satt2015 profile image
Satt2015 in reply to honjen43

Agree 100% with Jen! X

NannaB profile image
NannaB in reply to Satt2015

So do I XxxX

Sarah1972 profile image
Sarah1972

Fantastic that a professional was able to give you some facts instead of the usual leaflet. Wishing you both loads of fun for your future xxx

Heady profile image
Heady

Life is changing, it's not over. So yes, go out and do all the things your husband CAN do and appreciate every single second!

doglington profile image
doglington

Well done to your husband. Its a huge thing to accept.

Agree with all the others. Go out and do all those things you can still do.

Appreciate what you still have.

Love, Jean xx

Yvonneandgeorge profile image
Yvonneandgeorge

Psp changes everything xxx

Marie_14 profile image
Marie_14

Boobe

That's the best news I have had for ages! The doctor actually sounds human! It is amazing to have someone who is clearly understanding and on your side.

As everyone has said get your affairs in order and go and enjoy the time you have both left together.

Hugs to you!

Marie x x

daffodil48 profile image
daffodil48

that's great that he has accepted no driving and stop working. I was so relieved when my hubby stopped driving. xxxxx

raincitygirl profile image
raincitygirl

Well done! So glad you can tick that worry off your list!

Enjoy your time with hubby: he's still mobile, can still enjoy food, and communicate. Those are huge, and in time you may lose them. Most of all, you still have him!!

As our friend Eastern Cedar has said: "What I wouldn't give to be able to say that.."

XXX Anne G.

Mikey12345 profile image
Mikey12345 in reply to raincitygirl

Amen.

Liz

Motts profile image
Motts

Good Morning Boobe

In the world of PSP you found a neurologist who is a winner . . . with common sense.

Well Done!

Sending you and hubby lots of hugs as you travel your new path. Granni B

Donnasue1 profile image
Donnasue1

For my husband giving up driving was very painful, but after a near accident because he couldn’t turn his head around and the changes in his vision convinced him that it was necessary.

Also kudos to the Doctor, well done.

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