Thinking another Step down: Hospice called... - PSP Association

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Thinking another Step down

Dadshelper profile image
6 Replies

Hospice called me Friday morning because Dad felt ill, nausea, didn't want food or drink, very pale and a pressure sore on his backside that was about ready to open up. His vitals are good though. The pressure sore is being dealt with via another air mattress and foam padded dressing to the area.

Today, Sat, when I visited he didn't know me right off, took a bit to remember who I was. He still is not wanting food or drink, very weak and pale. He tried to talk but no sound was coming out, normally he at least mumbles. He fell asleep about 10 minutes after I arrived and was still sleeping when I left over an hour and half later.

Nursing home staff is on top of things and will call me immediately if there is any change. I guess after a year of 2-4 weekly visits they've come to the conclusion I am still very active in his care management :)

Ron

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Dadshelper profile image
Dadshelper
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6 Replies
raincitygirl profile image
raincitygirl

Gosh Ron, it does sound like a step down, doesn't it?

I recall someone experienced saying when the patient is sleeping 22 hours a day, they are very close to the end.....

Sounds like you're always there to make sure he is comfortable. That, and letting him know you're there and you love him... What more is there to do?

Big hugs and heart-felt wishes to you for the hard time to come XXX

Anne G.

Katiebow profile image
Katiebow

It seems that your Dad is giving up the fight, I know that they can rally but, if like me, you just want him to have a peaceful and painfree end to his life you are hoping he just slips away.

Sending much love

Kate xxx

Beads0122 profile image
Beads0122

Ron,

Strength and comfort friend during this difficult time. My thoughts and prayers are with you.

Bobby

Mikey12345 profile image
Mikey12345

Such a tough time. May you both have peace and acceptance. You have been so dedicated and a loyal son. He's a blessed man.

Hugs, Liz

Dadshelper profile image
Dadshelper

Thanks for all the replies. Dad is eating a bit now but not nearly as much as he was. Saturday evening they started him on Oxygen and he is still on it, probably going to stay on it. Through a LONG conversation of Yes/No I've learned he has been having evening visitors of friends and family, unfortunately everyone he mentions has already passed away years ago. Hospice is with him 4x a week now plus normal staff at nursing home, they put him on a 2 hour turn schedule to prevent pressure sores since he stays in bed pretty much all the time now. I gather from him he is no pain and he does sleep a lot more.

One day at a time....

Ron

doglington profile image
doglington

My thoughts are with you, Ron.

Its so hard just being there. You have done all you can.

I hope he stays calm and pain free.

love from Jean xx

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