This is my first time posting. My mum, 72 was diagnosed with CBD 18 months ago and we recently made the decision for her to go into a nursing home. Her mobility has deteriorated and her speech is slightly slurry, she has lost the use of her left arm. She is happy at the nursing home and her moving there has taken the pressure off me and my sister, as we were doing her shopping/washing etc when she was in a flat. I saw her today and it was a good day she was bright and we chatted like old times. When I got home I just burst into tears thinking of all the things we can no longer do together and how unfair this is and how I just want my Mum back 😥
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GJBox
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Welcome to the site. It's definitely takes an emotional toll watching family members or yourself, if the patient, struggle with these diseases. Try not to focus on what can't be done but more on what you can do. Things will take more planning/time but it's still possible to get out. Even a small outing for lunch, walk in the park, etc will do you both a world of good.
The site is a great place for info and just to ask questions. If you feel the need to rant go right ahead, we've all been there more then once.
So pleased you have found this site, GJBox! You have found a group who care and support.
My husband was diagnosed with CBD 3 months before he died, so we had no real time to come to terms with its effects. We just thought it was 'old age!
Am pleased your mum is happy in her new home. It will make some of your burden easier. Take her out for little trips. She will appreciate it all! There will come a time not too far ahead when it will be much more difficult - so do what you can now, and make memories together!
When you find it hard to bear, we will be here, and will understand exactly how you feel as we have been there too!
My husband had CBD. There are lots of us on this site who will understand what you are going through. Please ask any question and will do our best, we understand what you’re going through.
It sounds like you made the best decision for your mom, and your time will be better spent monitoring her care in the nursing home and as Ron above says, getting her out for some nice trips to alleviate boredom, and enjoy your relationship doing ‘normal’ things.
I have CBD and one day a care home will be my option of choice .... a care home might not be everyones choice but it is good that your mother is happy.
Tell her that we are here and wishing her well..............
It so difficult not to cry when changes happen in our lives AND THEY ARE NOT OUR CHOICES.
So here's my belief about tears . . . we have to let them out or we will drown.
Thank goodness your mom is happy where she is now. Please take care of yourself as you take care of your mom.
I hate to say it but some of my favorite memories of my mom were created when she was in the nursing home. . . we bonded more during those last years. Mom loved it when I rubbed lotion on her feet right before I headed home. As they say . . . It is the little things in life . . .
Sending Hugs to you and your mom oh and your sister too - Granni B
So sorry you have had to join this site - but prob the best thing you could do. Everyone here lives or has lived with the challenges of CBD/PSP.
How lovely that you have found the right care home for your mom and she is happy there. This is a fantastic achievement not one you wanted to achieve but needs must.
A happy chat and laughter today to file in your memory bank - may you have many more happy times together.
You are clearly a loving daughter don’t beat yourself up over the need for a Care home. Knowing you have found the right place is to be celebrated.
GJBox, I can relate to your sadness. I placed my husband with CBD symptoms in a nursing home as I knew keeping him at home would be way too much for me and his care would suffer. I'm sure he wasn't as happy as I would have liked but I am sure that most of the time the care was better than I could have given at home. It took a minimum of 2 people and a hoist to transfer him.
You sound like a loving daughter and and I'm sure will watch over your mum.
This is the best site ever for support through this journey, as you will find. Please come to us whenever you need. We've been there!!
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Feeling so sad
No Question, just sadness and exhaustion 
Feeling broken hearted 
Happy or sad?
