Posts - PSP Association | HealthUnlocked

PSP Association

9,266 members • 11,356 posts

All posts for June 2018

4R's v 3R's

Hi All, I know I have posted this before, but I think it's worth repeating! I got this from my counsellor, that I saw, when things were really tough for me,...

Hi All, I know I have posted this before, but I think it's worth repeating! I go...

Heady

•6 years ago

41 Replies

CBD Help

having just been informed of this site I wondered if there are other,s who Care for some one with CBD. My wife has CBD and I am her Carer and wonder if there...

having just been informed of this site I wondered if there are other,s who Care ...

jjbruce

•6 years ago

13 Replies

So Hospice begins

Friends, My wife had a fall on Monday and I took her to the ER and they transferred us to their downtown hospital because there was signs of previous bleeding...

Friends, My wife had a fall on Monday and I took her to the ER and they transfer...

Beads0122

•6 years ago

16 Replies

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Happy Birthday Amanda!

If I read the back posts correctly, the 8.6.18 London meet up was timed to coincide with Amanda's (Satt2015) birthday!...and it's still Thursday here, but...

If I read the back posts correctly, the 8.6.18 London meet up was timed to coinc...

raincitygirl

•6 years ago

27 Replies

Dancing the F and F

Here I am after another day of what I call (Dancing the F and F = Fear and Frustration). Each day the challenges are greater and it's getting harder and...

Here I am after another day of what I call (Dancing the F and F = Fear and Frus...

Cuttercat

•6 years ago

33 Replies

Sulking

Larry is now sulking. We had words again this morning. (Had a flare up on Monday.) There was a story on the news I missed the jist. Asked him what it was. He...

Larry is now sulking. We had words again this morning. (Had a flare up on Monday...

Hidden

•6 years ago

39 Replies

PSP Help for Dad

Dad has PSP for last three years. He is on Parkinson Medication for last three years. Since last Friday, he has started falling a lot more.. took him to doctor...

Dad has PSP for last three years. He is on Parkinson Medication for last three y...

vikasmahajan24

•6 years ago

2 Replies

Seeing signs of PSP in husband of 64 yrs

Since I happened upon this site, and immediately saw similarities in others comments about PSP, I'm hoping to understand what I'm up against. My husband has...

Since I happened upon this site, and immediately saw similarities in others comm...

Debspottery1

•6 years ago

9 Replies

Part 2

Valerie is in green !!

bryval

•6 years ago

8 Replies

Valerie's last trip

Pictures hopefully !!

bryval

•6 years ago

10 Replies

Uncontrollable Loud Humming

Like most other PSP suffers my wife was diagnosed with Parkinson in early 2010 and then PSP in April 2017. The biggest difficulty is the loud humming. Any...

Like most other PSP suffers my wife was diagnosed with Parkinson in early 2010 a...

Hidden

•6 years ago

6 Replies

My wife with PSP

Hi everyone .My wife who is 78 was first diagnosed with msa 2years ago.Last month tha5 had changed to PSP.She has slowed down tremendously ,and cannot walk...

Hi everyone .My wife who is 78 was first diagnosed with msa 2years ago.Last mont...

Sunnyday68

•6 years ago

7 Replies

Psp

My wife has PSP.Wanted to hear from other people with similar experiences

Sunnyday68

•6 years ago

9 Replies

Bells palsy: plan and assesment

Hi! I'm lhyne frm philippines. I am a taking caregiver and having ojt. Can i ask a question being a caregiver; what is your plan to a person having a bells...

Hi! I'm lhyne frm philippines. I am a taking caregiver and having ojt. Can i ask...

Lhyne

•6 years ago

3 Replies

Giving up is NOT an option! Trial without Catheter vs Supra-pubic

After being told by the GP in the nursing home, that my B stayed for 4 weeks after being discharged from the hospital, that it will be to his best interest to...

After being told by the GP in the nursing home, that my B stayed for 4 weeks aft...

Megabrew88

•6 years ago

17 Replies

Valerie finally laid to rest

Well we had a lovely weekend and a good send off for Valerie. My 3 daughters and 5 grandchildren all came down to Cornwall to make Valerie's wish come true....

Well we had a lovely weekend and a good send off for Valerie. My 3 daughters an...

bryval

•6 years ago

17 Replies

What a hoot

My mother-in-law is really quite poorly with PSP. As mentioned before in this forum she is in a nursing home getting excellent care, but is rapidly going...

My mother-in-law is really quite poorly with PSP. As mentioned before in this fo...

claredavieswales

•6 years ago

4 Replies

Does PEG work?

Mom feels uncomfortable after taking liquids and usually coughs. She experiences hiccups too after liquid intake. We are considering getting my mom a PEG...

Mom feels uncomfortable after taking liquids and usually coughs. She experiences...

pankaj911

•6 years ago

21 Replies

Glycopyrrolate is working for spit, phlegm and coughing

4 years in and hubby has had bad coughing from the start. He recently had a swallow function test and passed with flying colors. no food or liquid going near...

4 years in and hubby has had bad coughing from the start. He recently had a swa...

daffodil48

•6 years ago

3 Replies

Dementia or ‘just’ PSP?

Hi all, I’d appreciate some input on this... Does PSP ever mask dementia or is the dementia aspects part of it? Mum is 68 and was diagnosed about 2 years ago....

Hi all, I’d appreciate some input on this... Does PSP ever mask dementia or is ...

westcoastgirl

•6 years ago

13 Replies

Communication aids

Hi, My Mum is finding it increasingly difficult to speak. Partly due to volume and we have bought an ammplifier to help with that but i wondered if anyone had...

Hi, My Mum is finding it increasingly difficult to speak. Partly due to volume a...

Rich_con

•6 years ago

8 Replies

CBD--questions about Thiamine/B1 & Levodopa. . and what we could try?

Have any of you heard of the high-dose B-1/Thiamine treatment that people are talking about on the Parkinson's Board--there's a mention that the doctor...

Have any of you heard of the high-dose B-1/Thiamine treatment that people are ta...

LostinHeadSpace

•6 years ago

13 Replies

London Meetup Friday 8th June

Hi folks Just a reminder and who is going to the Brass Monkey on Thursday? Also to say everyone is welcome its an open fun meet up. So if you are new to...

Hi folks Just a reminder and who is going to the Brass Monkey on Thursday? Also ...

Kevin_1

•6 years ago

32 Replies

Mum has PSP

Just wanted to say Hi ... mum got her diagnosis yesterday, we are not sure how long she has had it for, one of the main problems is swallowing food and drinks...

Just wanted to say Hi ... mum got her diagnosis yesterday, we are not sure how l...

Holiday508

•6 years ago

12 Replies

Can people get pneumonia from foods?

Can my mom get pneumonia if food goes to her lungs?

Galarza

•6 years ago

16 Replies

Cbd oil

Sorry to be lazy but can anybody send me the link for the cbd oil please x

Mamapiggle

•6 years ago

4 Replies

Gout+

Larry is complaining about his foot. Looking at it this morning it looks red and swollen some. His father had gout. I think he may have it as well. Got a call...

Larry is complaining about his foot. Looking at it this morning it looks red and...

Hidden

•6 years ago

16 Replies

Book recomendations for caregivers anyone?

I did read the Savoy Book and just finished the Selfish Pig book by H. Marriot. I'd like to find something along the lines of training - showering, moving...

I did read the Savoy Book and just finished the Selfish Pig book by H. Marriot. ...

aliciamq

•6 years ago

19 Replies

Bad day.....but maybe some hope for a chat

Hi everyone not such a good day today...nan is struggling quite a lot with another chest infection, the staff are doing all they can and she’s started...

Hi everyone not such a good day today...nan is struggling quite a lot with anoth...

Hidden

•6 years ago

3 Replies

Hospitalised unexpectedly

Update Hospitalised after nasty chest infection. They seem to want full assessment and have said will send me home after (finally) FULL CARE PLAN. Denied by...

Update Hospitalised after nasty chest infection. They seem to want full assessm...

SmurfetteVeritas

•6 years ago

3 Replies

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Posts - PSP Association | HealthUnlocked

PSP Association

All posts for June 2018

4R's v 3R's

CBD Help

So Hospice begins

Happy Birthday Amanda!

Dancing the F and F

Sulking

PSP Help for Dad

Seeing signs of PSP in husband of 64 yrs

Part 2

Valerie's last trip

Uncontrollable Loud Humming

My wife with PSP

Psp

Bells palsy: plan and assesment

Giving up is NOT an option! Trial without Catheter vs Supra-pubic

Valerie finally laid to rest

What a hoot

Does PEG work?

Glycopyrrolate is working for spit, phlegm and coughing

Dementia or ‘just’ PSP?

Communication aids

CBD--questions about Thiamine/B1 & Levodopa. . and what we could try?

London Meetup Friday 8th June

Mum has PSP

Can people get pneumonia from foods?

Cbd oil

Gout+

Book recomendations for caregivers anyone?

Bad day.....but maybe some hope for a chat

Hospitalised unexpectedly

Search posts

Latest poll

What are your main concerns as a carer?

Topics

Archive