Uncontrollable Loud Humming

Like most other PSP suffers my wife was diagnosed with Parkinson in early 2010 and then PSP in April 2017. The biggest difficulty is the loud humming. Any suggestions?

[Kevin_1]

Hi Patdean

Repetitive behaviours seem to be quite common (reading the threads).

Again from what I've read here they are just a stage and they do stop. My wife had repetitive hand movements. They stopped after a month.

I seem to remember there was another here who did loud humming. Hopefully they will get back to you.

If you put music on with catchy tunes can she hum to them? I'm just wondering whether that might unstick the brains record needle so to speak. Just a thought. It might need some encouragement to get her started.

Anyway, welcome to the forum.

Best to you

Kevin

[Hidden in reply to Kevin_1]

I just ran across this post and want to send hugs across the pond... hope you are sailing! Granni B

[enjoysalud]

No humming.............but the need for his wrist watch even when going to bed and a small flashlight to see his watch. This persisted................even when the hospital for pneumonia he requested those items.

[Hidden]

Sorry to say,it's all part of PSP.night time is the worst for my husband,I do a lot of poking and tell him to open his mouth.it's seem to be soothing for him,ear plugs.Sorry that's all I got😊

Dee in BC

[raincitygirl]

Hello Patdean and Welcome!

I'm no help either: My hubby (CBD) either snore-talks or snore-hums-drones at night! Because he has such limited, impaired speech now, (5 yrs in) I wonder if he's dreaming of a conversation he's having? If so, I really don't want to end it for him! It never happens while he's awake.

Anne G. in BC

[AmandaF]

Hallo, Patdean,

My mother did this a lot. Because it's completely involuntary my mother was unable to control it in any way although very aware (and embarrassed) about it.

I found over time that when she concentrated on something, the humming would stop. My mum had a little pocket radio with earphones and when she plugged this in and started to listen, the humming stopped. It's as if when one part of the brain engages, another switches off.

But apart from that I didn't find any "solution" and I don't think there is one. Honestly, I did find the noise grating and difficult to live with sometimes. To my shame I sometimes plugged the radio in rather than distract her by talking to her. Now I would do anything to hear that humming again.

I wish you and your wife all the very best, Patdean.

Amanda.