Book recomendations for caregivers anyone?

[aliciamq]

I did read the Savoy Book and just finished the Selfish Pig book by H. Marriot. I'd like to find something along the lines of training - showering, moving someone (lifting)and bathrooming details. How to and what not to do~ Thanks

[enjoysalud]

I have found YouTube to be the best in explanations and demonstrations. In fact, great teaching.

I did NOT find the Savoy book helpful in any shape or form.

Good luck!

[Katiebow]

I too didn't find Last Dance at The Savoy' helpful, these people didn't live in the same world as the one we inhabited on our PSP journey. I also read You, Me and PSP which I found gushing and over sentimental. No other recommendations, sorry.

Kate xx

[Yvonneandgeorge in reply to Katiebow]

Yes I red them both very sad xxxx

[kenh1]

When I first contacted PSPA in 2013 my wife having been diagnosed with CBD I was sent a Carer's information pack. Full of brilliant advice and useful contacts. I still use it today. Do they not produce it anymore? Our local hospice has carer's days. They gave me a hand massage and then taught me how to give it to my wife. Very relaxing for both of us.

[Hidden]

I learned most of my care giving from Larry’s physical therapist and occupational therapist. Plus reading online from google searches, YouTube videos and posts on this site.

[patch33]

I really liked The selfish pig, somebody lent it to me on their kindle, it really helped me when I felt guilty about not doing enough, that was before I found this forum which is even better as it's specifically for psp sufferers and carers. Although i did look for a book on coping with the physical side and couldn't find anything , could do with nurses training, fed up of having sore shoulders !

I did think about doing the first aid course with 'Les pompiers' (french fire brigade) as I think they teach you how to lift people properly. In the UK I presume it's still the Red cross. Could be worth a try.

Dawn

[enjoysalud in reply to patch33]

Try YouTube.....................think of it as learning in modules. The verbal and visual, for me, you can't beat.

[patch33 in reply to enjoysalud]

Will have to have another look, last time I did a search didn't find anything useful but maybe I used the wrong keywords, or could have been in french, can't remember, it was a while ago.

[enjoysalud in reply to patch33]

I went to YouTube and wrote in

1. Wheel chair to toilet seat transfer

2. patient lifting techniques

3. transfer techniques from chair to bed

All three brought excellent results. I think you need to write simple and clear requests.

Good luck

[patch33 in reply to enjoysalud]

Will try those, thank you ! x

[aliciamq in reply to enjoysalud]

I did watch the transfer videos and more - you tube is a good source. thx🙂

[Kevin_1]

Have you tried looking for a Care Training Manual?

[aliciamq in reply to Kevin_1]

That's what I'm looking for!!!!! Got a title or author name for me?

[Kevin_1 in reply to aliciamq]

Hi Alicia

Here are two

amazon.co.uk/Carers-Bible-A...

And

amazon.co.uk/Carers-Handboo...

With both if you click on the picture of the book you will be able to read a portion of each book and decide which.

Now I know where to go the get carers advice!

Waiving

Kevin

Oh, I think your in the States?

amazon.com/Carers-Handbook-...

And

amazon.com/Carers-Bible-Ama...

[aliciamq in reply to Kevin_1]

Thanks Much

[LuisRodicioRodicio]

Hi Aliciamq,

I am sending by internal-private mail our experiences with PSP hoping could be usefull

Hug.

Luis

[Pjgil]

You,me and psp by Shelby Locke is great. Insiteful and moving. Plus all profits go to the pspa. You can order it from Amazon either in paperback or for your e-reader.

[aliciamq in reply to Pjgil]

Thx, I had forgotten about that one🙂

[aliciamq in reply to aliciamq]

I just finished "Finding Meaning with Charles" Like the Savoy book, it was by someone with large resources, which was annoying- sorry. There was a little of the nitty-gritty. As with the Savoy book, I found it difficult to get past the self-promoting baloney.