Since I happened upon this site, and immediately saw similarities in others comments about PSP, I'm hoping to understand what I'm up against. My husband has been drooling, droopy and bulging, staring eyes, not sleeping more than 4-5 hours, scratching at himself, driving on the middle line of the road, having minor accidents, forgetting to pay bills, doing strange things around the house thinking he's fixing things. Having trouble with balance, shuffles, falling just started. He's overweight- keeps eating junk food. He'd had sepsis almost two years ago- antibiotics for almost 6 months. Trying to get him to change his eating to mostly vegetarian and do detox- but he's gotten more stubborn and bull headed since this started in 2015. I have to work for health benefits as he's self employed- so I'm afraid what he'll do when I leave for a 3 day block shift in health care at my job. He's weak, can't lift much more than 50 lbs. Has trouble getting up out of a chair. He's been injuring himself a lot in last 6 months or so. He teaches music lessons- his students have noticed the changes- have begun to drop off. Family sees the changes- but are either afraid to discuss it- or are hoping I'll be able to handle it myself- as they all have their own responsibilities.
Is PSP a recognized disability in the US? Doctors don't seem to be alert to the signs. Is this connected to autoimmune issues? His dad had Parkinson's, dementia and Alzheimer's as well as heart disease.