CBD Help

[jjbruce]

having just been informed of this site I wondered if there are other,s who Care for some one with CBD. My wife has CBD and I am her Carer and wonder if there is other,s out there who are in the same situation and maybe able to share their experiences which may help others.

[kenh1]

I have been caring for my wife who has CBD for more than 5 years. There are many others who have far more experience than me. This is a wonderful site. Just share problems, worries and fears, joys and sorrows and you will always find help. There are loads of posts and advice.

Ken.

[enjoysalud]

At the top of the page, above PSP ASSOCIATION, and laterally with HEALTH UNLOCKED you will see AN OVAL BAR that states "Search PSP Association".....write in CBD and your enter key. Tons of past postings on CBD wil come up.

There are tons of info on this site, but I learned it takes awhile to learn how to access it.

Good luck!

Also, it would be helpful for you to share where you reside (me in Los Angeles, CA, USA), and a bit of your story....age? children? etc.

[raincitygirl]

Hello JJ and Welcome!

I am the spouse of a CBD sufferer. My husband was first dx in 2016, first symptoms 2013. We live on the west coast of Canada. This site is your best source of information and support. You are welcome and encouraged to ask questions and just vent when you need to!!

I echo Margarita's suggestion that you tell us more about your CBD journey...

Cheers!

Anne G.

[honjen43]

Hi JJ and welcome. I live in New Zealand. There seemed few CBD posts on this site when I joined in 2016, but it quickly became my source for answers to every frustrating problem I was faced with due to lack of knowledge and understanding in the medical profession at the time. Ours was a short precipitous journey, but I have continued to watch, learn and respond. Others have been posting a lot longer.

If you touch my name you will find you can access all my posts and responses. Remember, each journey is different and unpredictable, but you can both manage that journey with the help you will find here.

Here there are carers and sufferers. It helps if both of you can post, since we all become friends and supporters, and it is saddening to find that a CBD/PSP sufferer has ceased to communicate through inability, and no-one around them knows of this site. Some are still keeping us in close touch (K&L) while others have not replied to posts and are no doubt in their own limbo (Jill). You are constantly in my thoughts!

So broadcast to your carers, specialists, others who may benefit, so that it can be a lifeline when a patient cannot communicate. I have passed the site info on in the hope that more people Down Under will access and form a "body" of information for where to get help and how that is specific to this country, like has happened elsewhere.

The Internet means we are never alone on this site, but maybe there could be more benefits if this site were more widely known here.

Hugs to all

Jen xxx

[jjbruce in reply to honjen43]

Hi Jen thanks for reply good to know others are out there with same problems and maybe able to help, although may take me a bit of time to use.

Bye from sunny Scotland

[cameoboy11]

I have been diagnosed with CBD and this is a brilliant site for info

And support. I am in Cornwall UK

Where are you ? Jo

[jjbruce in reply to cameoboy11]

Hi Jo Iam in Prestwick Scotland with lots of lovely sunshine at present.

[cameoboy11 in reply to jjbruce]

Love Scotland but have had to surrender my driving licence. Bummer ! Jo

[Mamapiggle]

Hi, I was diagnosed with cbd last October. I joined 2 months ago in Yorkshire

[cameoboy11 in reply to Mamapiggle]

Hi i was born in Yorkshire

Where are you exactly ? Jo

[Mamapiggle in reply to cameoboy11]

Hi Jo I live near Leeds. Jeantte

[cameoboy11 in reply to Mamapiggle]

Will let you know when i will be in your vicinity jo x

[Aprilfool20]

Hi jjbruce

Diagnosed last June withCBD but different consultant says Parkinsonism,which could be PSP/cbd / parkinsons or annything similar. Seeing consultant in August to establish progression.( which seems to have got worse the last couple of weeks ) doc given me short course of Diazepam to help with the internal shaking- not common in everyone. This site is mine of information. Hoping to join the Pippin study for research into this horror.

Best wishes

Jayne from Norwich, England