Posts - PSP Association | HealthUnlocked

PSP Association

9,266 members • 11,356 posts

All posts for April 2018

To speak or not speak

Hi! Has anyone had experience with voice banking I've got a nurse coming to talk about it but know if my wasting my time and energy. Any thoughts welcome!...

Hi! Has anyone had experience with voice banking I've got a nurse coming to talk...

Mamapiggle

•6 years ago

6 Replies

George H. W. Bush has a neurological disease.

He has a Parkinson’s like disease. That got mentioned this morning on the news. My first thought was which one? Three years ago this information would have...

He has a Parkinson’s like disease. That got mentioned this morning on the news. ...

Hidden

•6 years ago

2 Replies

Question

Good morning all well I am noticing something new with Charlie it seems he is cold all the time, in the 45 years we have been married I have known him to say...

Good morning all well I am noticing something new with Charlie it seems he is co...

Marg52

•6 years ago

16 Replies

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Sucking Machine

Can anyone advise on the best sucking machine .... tks

Jaikke

•6 years ago

1 Reply

Possible aid for persons with swallowing problems

http://www.healthscape.ca/Pages/news-12072017-thejoyofeating.aspx

daffodil48

•6 years ago

3 Replies

Persisting in the Face of Caregiver Difficulties: Moving from Pessimism to Optimism

I know, I know...Nice thoughts - but is it realistic? Well, since it's for free, why not tune in and see? At least someone is trying to give us Caregivers...

I know, I know...Nice thoughts - but is it realistic? Well, since it's for free...

raincitygirl

•6 years ago

10 Replies

The end and a new beginning

We had Valerie's funeral today and I'm now sitting quietly on my own having a "medicinal" brandy. The chapel was full to bursting with so many family , old and...

We had Valerie's funeral today and I'm now sitting quietly on my own having a "m...

bryval

•6 years ago

22 Replies

Wonder if this would help PSP patients. think I saw this posted before

http://www.healthscape.ca/Pages/news-12072017-thejoyofeating.aspx

daffodil48

•6 years ago

6 Replies

Electric Exercise Bike Video from Weir 1947

Hi folks I am posting this video for Elena. It shows the bike that her sister uses to maintain her muscle functioning....

Hi folks I am posting this video for Elena. It shows the bike that her sister ...

Kevin_1

•6 years ago

13 Replies

Bungee Jump to raise money for PSPA

Hi, my name is Amanda on the 12th of August I am doing a 160ft bungee jump to help raise awareness and money for PSP Association. Any support or donations will...

Hi, my name is Amanda on the 12th of August I am doing a 160ft bungee jump to he...

Mandyfox6

•6 years ago

6 Replies

My thoughts!

Thank you everyone, your lovely comments, except you George,( which made me laugh!) have helped a very emotional day end. Yes, it was extremely hard visiting...

Thank you everyone, your lovely comments, except you George,( which made me laug...

Heady

•6 years ago

15 Replies

To make you smile

No horseplay but when they cram more into a crowded lift, the Chinese say, “Sticky rice, Sticky rice” which makes it very cosy. XxxX

No horseplay but when they cram more into a crowded lift, the Chinese say, “Stic...

NannaB

•6 years ago

9 Replies

Yes Georgepa and Jean, we are here...

Another packed, great day. The amazing Terracotta Army; walking into the massive enclosure and seeing the army was very emotional. Our amazing guide told us...

Another packed, great day. The amazing Terracotta Army; walking into the massi...

NannaB

•6 years ago

16 Replies

PSP

Hi has anybody managed to get chc funding, my mother is in the late stages of Psp and also has a suspected cancer seen on a scan but no biopsy’s taken due to...

Hi has anybody managed to get chc funding, my mother is in the late stages of Ps...

Kaylewis

•6 years ago

12 Replies

PSP problems.

Hi everybody my name is Kay, I gave up work 2 years ago to look after my mum who is now 81 and has PSP, a real fighter and has lived 3 yrs longer than she was...

Hi everybody my name is Kay, I gave up work 2 years ago to look after my mum who...

Kaylewis

•6 years ago

3 Replies

TENS machine

Just a thought! Anyone have experience using a TENS machine for their loved ones pains and stiffness. I did a search but nothing came up. My hubby is not in...

Just a thought! Anyone have experience using a TENS machine for their loved ones...

daffodil48

•6 years ago

7 Replies

Jpc1335 and Donnasue1

John and Donna Jpc1335,Donnasue1

Donnasue1

•6 years ago

12 Replies

Baclofen.

Morning all. My mother started on the above Friday & I've just had a call from her carer. She said she has messed herself a couple of times,feels ill,can...

Morning all. My mother started on the above Friday & I've just had a call from h...

Sonic47

•6 years ago

10 Replies

Away for some time

My first post was filled with anger and frustration having just received my wife's diagnosis of PSP with the consultant giving her a 2 to 6 month prognosis due...

My first post was filled with anger and frustration having just received my wife...

Willow_rob

•6 years ago

25 Replies

CHC- funding advice

Hi, I’ve been a member on here for a couple of years, and regularly read all the posts, but this is the first time I have written a post. My mother was...

Hi, I’ve been a member on here for a couple of years, and regularly read all the...

SarahB1972

•6 years ago

4 Replies

Check out this news about psp AbbVie study

alzheimersnewstoday.com/AbbVie-8e12/

Jpc1335

•6 years ago

3 Replies

Vince Capaldo 61 years old Just been diagnosed with cortiabasal degeneration

Hi my name is vince from Perth wa I’ve just been diagnosed with cortiabasal degeneration.. after many trips to nueorosugeon.. was just wondering if there’s any...

Hi my name is vince from Perth wa I’ve just been diagnosed with cortiabasal dege...

Cspaldo

•6 years ago

14 Replies

Newest information on AbbVie-8e12

Check the latest information: alzheimersnewstoday.com/AbbVie-8e12/

Jpc1335

•6 years ago

2 Replies

Awarded CHC

After long time challenges my hasband awarded with CHC. I am very pleased but I don't know what's happening next , I have received a recorded envelope with...

After long time challenges my hasband awarded with CHC. I am very pleased but I ...

Samila

•6 years ago

14 Replies

Pain in CBD

Has anyone ever heard of Nano technology for relieving pain?

Binababoo

•6 years ago

10 Replies

Complicated afternoons

I am observing that my wife, sick of PSP for 6 years, is more nervous, restless, irritable, impatient in the afternoons presenting some tense and difficult...

I am observing that my wife, sick of PSP for 6 years, is more nervous, restless,...

LuisRodicioRodicio

•6 years ago

18 Replies

High dose Thiamine

Has anyone tried high dose Thiamine? Some parkinson patients seem to be having a lot of success with this. Thanks

Has anyone tried high dose Thiamine? Some parkinson patients seem to be having ...

falcon946

•6 years ago

9 Replies

Can someone give me advice

Anyone with corticobasal deganeration know my mum is in her 5th year with this lately her oxgen levels are 93 no sign off infection or anythin her legs causin...

Anyone with corticobasal deganeration know my mum is in her 5th year with this l...

Mickyd38

•6 years ago

8 Replies

Stand Aid or Hoyer on Carpet

VA is hoping to provide us with an electric Stand Aid. The wheels and base are similar to a Hoyer Lift. They are concerned that I will be unable to use it on...

VA is hoping to provide us with an electric Stand Aid. The wheels and base are ...

Karynleitner

•6 years ago

16 Replies

Cannabis

my husband as psp and i was wondering if cannabis would help. Does anyone know have any knowledge of it

my husband as psp and i was wondering if cannabis would help. Does anyone know h...

Bhaja

•6 years ago

4 Replies

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Posts - PSP Association | HealthUnlocked

PSP Association

All posts for April 2018

To speak or not speak

George H. W. Bush has a neurological disease.

Question

Sucking Machine

Possible aid for persons with swallowing problems

Persisting in the Face of Caregiver Difficulties: Moving from Pessimism to Optimism

The end and a new beginning

Wonder if this would help PSP patients. think I saw this posted before

Electric Exercise Bike Video from Weir 1947

Bungee Jump to raise money for PSPA

My thoughts!

To make you smile

Yes Georgepa and Jean, we are here...

PSP

PSP problems.

TENS machine

Jpc1335 and Donnasue1

Baclofen.

Away for some time

CHC- funding advice

Check out this news about psp AbbVie study

Vince Capaldo 61 years old Just been diagnosed with cortiabasal degeneration

Newest information on AbbVie-8e12

Awarded CHC

Pain in CBD

Complicated afternoons

High dose Thiamine

Can someone give me advice

Stand Aid or Hoyer on Carpet

Cannabis

Search posts

Latest poll

What are your main concerns as a carer?

Topics

Archive