I am observing that my wife, sick of PSP for 6 years, is more nervous, restless, irritable, impatient in the afternoons presenting some tense and difficult episodes that ends up diminishing but leaving some sequel until the Lorazepan of the night makes its effect.
Have you observed something similar in your experience with PSP patients?
Is it a situation where it would be appropriate to think about using CBD Oil?
Thanks a lot.
Luis
Hi Luis
Sorry short reply - I should have left an hour ago.
Yes, Liz was much the same and CBD oil helped immensely.
You might also consider talking to your Dr about Clonazepam instead of Lorazepam... It has a longer half life.
Hugs to you
Kevin
Thank you a lot.
Hug.
Luis
I've heard of "sundowners syndrome" in various mental illness patients. The patients tend to get more restless or easily agitated as the day winds down.
Ron
Hi Luis;
I don't know if my experience is the same, but overall I find my husband is more tired, fatigued more easily and that gets him more impatient and shorter-tempered. I tell myself it makes sense because the disease is progressive - no matter how much effort we put into it - and eventually the patient is going to experience decline. Fatigue, disappointment, impatience...none of that seems out of place given the experience they are having with the illness.
Wishing you peace and respite. Hugs XXX
Anne G.
Thank you Anne.
Have you a nice and peacefull weekend.
Hugs.
Luis
My Mum gets tired as the day goes on, her speech is not as clear as in the morning. She also is less able to stand and weight bear, which means the carers have started to come in pairs and have organised, with my Dad (main carer but in a wheelchair) and the OT a hoist so she can't fall and injure herself. She does also get more frustrated with herself, and crotchety because of that as the day goes on. Julie
My husband, with CBD, has similar behavior beginning daily around 3:00 PM. First symptom is that he starts itching, then becomes irritable and anxious. This passes usually in about 2 hours with no treatment.
Hugs,
Liz
Yep, that's Charles. 3 p.m. is the witching hour. Scratching and irritable.
It passes as well. But I have my answer and we are not alone. Thanks,
Cuttercat
Curious...what is your answer? (If you don't mind sharing)
There is none really. Charles is still on Sinemet and we are trying to adjust that. It's hard because of the impulsiveness and the brain.
I try so hard to not react but the rational part of me still does. Help.
Thanks Mikey.
Cuttercat
Yes. Very hard to not react. I also try to be positive and understanding. Doesn't always work. Wish I knew the answers that would help. Guess we just hang in there.
Hugs,
Liz
Hi Luis,
Sorry for the late reply.
Yes, my B is the same with “antnsy pantsy” dance between 3-6pm he gets agitated and more stubborn, restless and aggressive. Refuses to sit down and would insist on standing up. And when you stand him up he wants to sit down.😩
What I found (by accident) that helped (with the Parkinson’s Nurse’s nod and his GP) is not to give him his 4pm Sinemet. He is NOT aggressive at all at night now.
Also when he becomes restless, and wants to stand up, I just let him do what he wants with assistance. Tough when you are trying to prepare dinner etc. It’s exhausting and relentless, BUT it somehow calms him down.
Best,
Mx
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