John and Donna
Jpc1335,Donnasue1
John and Donna
Jpc1335,Donnasue1
What lovely smiles! Long may they continue. Will be watching progress with interest.
Hugs
Jen xxx
Lovely photo. Glad you can get out x
Thank you, John is in a wheelchair, so we do get out and about often.
Hi Donnasue, you and your husband, John, look so healthy. I am especially impressed with him because he is the patient.
I know Johne is participating in a clinical trial, and last you commented on his improvement you noted that his arm was gaining more mobility.
Since he first started the trial would you please share the ALL the changes of progress that are visible. Would you also share the name of the trial and the month and year he started it.
Thank you, Margarita from Los Angeles
Hadn’t read this until after I replied to your other question. John will complete one year of the clinical in June. We have been assured he will continue receiving the infusions for the rest of his life once it becomes an “open label”
Drug. His clinical is at the University of Chicago, and it is AbbV conducting the trials.
Donna
Great picture of you. My Gene also enjoys getting out for rides or eating out except he is having a time with diarrhea and that has curtailed our outings. Will see his doctor tomorrow. Keep going as long as you can. Hugs, Nancy andGene