Jpc1335 and Donnasue1: John and Donna Jpc... - PSP Association

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Jpc1335 and Donnasue1

Donnasue1 profile image
12 Replies

John and Donna

Jpc1335,Donnasue1

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Donnasue1 profile image
Donnasue1
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12 Replies
Kevin_1 profile image
Kevin_1

You guy's look great :)

Good to see you. :)

Yvonneandgeorge profile image
Yvonneandgeorge in reply to Kevin_1

Lovely photo sending loads of live Yvonne x

Abrecheisen53 profile image
Abrecheisen53

Beautiful couple!

Alice

raincitygirl profile image
raincitygirl

Hello beautiful people!

Anne G.

honjen43 profile image
honjen43

What lovely smiles! Long may they continue. Will be watching progress with interest.

Hugs

Jen xxx

Dickenson2 profile image
Dickenson2

Lovely photo. Glad you can get out x

Donnasue1 profile image
Donnasue1

Thank you, John is in a wheelchair, so we do get out and about often.

Nanny857 profile image
Nanny857 in reply to Donnasue1

Lovely photo and beautiful smiles. Long may you continue to get out and about and share happy times.

Lots of love Nanny857xx

Donnasue1 profile image
Donnasue1 in reply to Nanny857

Thank you Nanny, looks like you are doing the same. It’s important to laugh and enjoy the here and now.

enjoysalud profile image
enjoysalud

Hi Donnasue, you and your husband, John, look so healthy. I am especially impressed with him because he is the patient.

I know Johne is participating in a clinical trial, and last you commented on his improvement you noted that his arm was gaining more mobility.

Since he first started the trial would you please share the ALL the changes of progress that are visible. Would you also share the name of the trial and the month and year he started it.

Thank you, Margarita from Los Angeles

Jpc1335 profile image
Jpc1335 in reply to enjoysalud

Hadn’t read this until after I replied to your other question. John will complete one year of the clinical in June. We have been assured he will continue receiving the infusions for the rest of his life once it becomes an “open label”

Drug. His clinical is at the University of Chicago, and it is AbbV conducting the trials.

Donna

Artteach10 profile image
Artteach10

Great picture of you. My Gene also enjoys getting out for rides or eating out except he is having a time with diarrhea and that has curtailed our outings. Will see his doctor tomorrow. Keep going as long as you can. Hugs, Nancy andGene