Posts - PSP Association | HealthUnlocked

PSP Association

9,266 members • 11,356 posts

All posts for October 2015

Can't accept

Tried to talk to George about care, when he wont be able to decide what he wants to do, so we could put it into place when needed, but he did not want to talk....

Tried to talk to George about care, when he wont be able to decide what he wants...

Yvonneandgeorge

•9 years ago

New hope for PD

Has anyone read about a new study that found a leukemia drug, nilotinib, looks very promising for Parkinson's and related diseases. It was a small study, but...

Has anyone read about a new study that found a leukemia drug, nilotinib, looks v...

•9 years ago

Help!! Bedside commode problems

My spouse has sit on the bedside commode since 2AM. It is 6 AM. I do not know how to get him off. He woke up at 2 soaked. I got up and helped him to the pot,...

My spouse has sit on the bedside commode since 2AM. It is 6 AM. I do not know ho...

•9 years ago

Want to take advantage of all our features? Just log in!

or

This made me smile

So I thought it may make you smile as well. X

So I thought it may make you smile as well. X

•9 years ago

Pneumonia/sepsis again

Hi My husband has just been admitted to hospital again with yet another infection it is the forth time in about 6 weeks.The doctor has said it is...

Hi My husband has just been admitted to hospital again with yet another infecti...

•9 years ago

I guess it's advancing

Hi everyone. My mom in law was diagnosed about 2 months ago, and were surprised to see she responded to carbidopa/levodopa. However, the benefits seem to have...

Hi everyone. My mom in law was diagnosed about 2 months ago, and were surprised ...

•9 years ago

Question

I'm new to this group. I joined due to my friend has psp and is in the process of passing. It's been 9 days since she has been I call it sleeping... But my...

I'm new to this group. I joined due to my friend has psp and is in the process o...

•9 years ago

Me and my big mouth

Well I should have kept the good news to myself. In the post today is notice of my DLA stopping because My birthday is 4 months after April 1948 . I must...

Well I should have kept the good news to myself. In the post today is notice of...

•9 years ago

A little good news for a change

For all those struggling with CBD and especially those with an Alien hand. I got fed up removing Bills hand from his neck especially as he will not let me cut...

For all those struggling with CBD and especially those with an Alien hand. I go...

•9 years ago

Munchausen syndrome

Folks, we have either a troll or someone genuinely suffering from this syndrome on site. Take your pick, but don't waste your sympathy. Generally this site...

Folks, we have either a troll or someone genuinely suffering from this syndrome...

•9 years ago

Does anyone have experience of using a drip or other measure to increase fluid uptake ?

The consultant who originally made the diagnosis of PSP has recently said that my friend is now at the end stage and that UTI’s are a particular risk. Her...

The consultant who originally made the diagnosis of PSP has recently said that m...

•9 years ago

New to group not to PSP!

Hi all, this is my first post even though I have been following people for some time, I just thought now was right for me, after going through 3 years of hell....

Hi all, this is my first post even though I have been following people for some ...

•9 years ago

Young

I mean no disrespect to the many brave, selfless and infinitely kind people who subscribe to this board, which is truly a blessing. However, and this has...

I mean no disrespect to the many brave, selfless and infinitely kind people who ...

timinsuranceman

•9 years ago

Chris

Hi new to the psp support not sure if I'm doing this right or not , so at end of this if I get a reply I'll know I'm on the right track ! Hubby George...

Hi new to the psp support not sure if I'm doing this right or not , so at end of...

•9 years ago

Not as much of a shock...

I knew something was wrong quite a long time ago; I was so clumsy, bad at sport, had no sense of balance and so on when I was a child. However, it was only...

I knew something was wrong quite a long time ago; I was so clumsy, bad at sport,...

timinsuranceman

•9 years ago

Emergency hospital visit

On Sunday late morning I took G for a shower, he had been " Off It " the day before so did not rush him, but when I undressed him there was blood ( not a...

On Sunday late morning I took G for a shower, he had been " Off It " the day ...

•9 years ago

Front of our house

Heady they put a step in and handrails did not take them long to do it xxx

Heady they put a step in and handrails did not take them long to do it xxx

Yvonneandgeorge

•9 years ago

Thank you friends

Thank you for the outpouring of warmth to my announcement of my Bears death. When I start to get a little down I just retread them. You people are wonderful.

Thank you for the outpouring of warmth to my announcement of my Bears death. Wh...

•9 years ago

Next challange!!!

OK, I hate social services! Had this horrible man come around to see about adapting the outside, so I can get S in and out of the house. Why do they always...

OK, I hate social services! Had this horrible man come around to see about adap...

•9 years ago

CBD CorticoBasal Degeneration Support Group

Hi all I would like to start a CBD support group which is an off shoot to the PSP support group. I have never started a support group like this before and...

Hi all I would like to start a CBD support group which is an off shoot to the ...

•9 years ago

New to geoup

Hi I'm new to the group too. My mum has CBD and is now in a nursing home. She seems to have declined rapidly over the past couple of weeks and is now mainly...

Hi I'm new to the group too. My mum has CBD and is now in a nursing home. She se...

•9 years ago

Feelings

So true, I often feel like this....xx

So true, I often feel like this....xx

•9 years ago

Not the best day.

Last night, Janet died in her sleep.. I'm not sure if I've met any of you. But she is now free of this horrid debilitating, awful illness. Pls don't even talk...

Last night, Janet died in her sleep.. I'm not sure if I've met any of you. But ...

•9 years ago

Neck and Back Pain

I have read a lot of very helpful posts over the last few months re neck & back pain. I am trying to find out what pain killers you use and more importantly...

I have read a lot of very helpful posts over the last few months re neck & back ...

•9 years ago

Sleeping Pills

I was wondering if most of you give your significant others sleep aids. David is not sleeping well at night and the doctor was going to give him something but...

I was wondering if most of you give your significant others sleep aids. David is...

•9 years ago

What a night

Last night was the worse night since George has been ill, he started from 2.45 in the morning, I did not get in bed until 1 o'clock , he was calling out help...

Last night was the worse night since George has been ill, he started from 2.45 i...

Yvonneandgeorge

•9 years ago

New to group

Hi everybody I have joined this group as mum was diagnosed with psp on Monday she hasn't been well for approximately 3 yrs now consultants thought it was...

Hi everybody I have joined this group as mum was diagnosed with psp on Monday s...

•9 years ago

life

hi anyone having difficulties remembering the good times? x

hi anyone having difficulties remembering the good times? x

•9 years ago

Morning Coffee!

Oh, it's great. My daughter came to stay last night. Had a lovely evening, putting the world to rights, until three o'clock this morning! Now? I am sitting...

Oh, it's great. My daughter came to stay last night. Had a lovely evening, put...

•9 years ago

Very upsetting day

Our day started well, G had a reasonable night, so for a change I got up not feeling tired. The phone rang asking me. If I was free for someone from Social...

Our day started well, G had a reasonable night, so for a change I got up not fe...

•9 years ago

Search posts

Latest poll

What are your main concerns as a carer?

Topics

All things PSP Association(134)

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.

Archive

2024

Jan Feb Mar Apr May

Jun

Jul

Aug

Sep

Oct

Nov

Dec

2023

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2022

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2021

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2020

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2019

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2018

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2017

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2016

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2015

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2014

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2013

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2012

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2011

Jan

Feb

Apr

May

Jun Jul Aug Sep Oct Nov Dec