Hi all, this is my first post even though I have been following people for some time, I just thought now was right for me, after going through 3 years of hell. My husband Rob was diagnosed with PSP back in December 2012 after being misdiagnosed with all sorts of illness!
Sadly my husband gave up the fight 6 weeks ago today, after being taken in hospital for the first time with a water infection (or so they thought) which turned out to be acute pneumonia. We didn't believe Rob was at the last stage of PSP until he contracted the infection. After being in hospital for 2 days, he was moved to a respiratory ward for his oxygen levels but none of his paper work was forwarded on regarding his needs and the PSP, consequently he was left to fall in the middle of the night! The next morning when my daughter and I went to see him, he was unrecognisable with black eyes, split lip and stitches in his brow! We had to insist on a CT scan to make sure the fall had not caused more damage. As after the fall he was unconscious and never came round again.
As much as we love and miss him, we know he is at peace and didn't want to live with this awful disease any longer.
I've read through some of your blogs and seen that a lot of you have cared a lot longer then I did for my husband and I really feel for you.
If anyone would like to chat or ask advice please reply.