New to geoup: Hi I'm new to the group too... - PSP Association

PSP Association

9,333 members11,388 posts

New to geoup

Bob40 profile image
7 Replies

Hi I'm new to the group too. My mum has CBD and is now in a nursing home. She seems to have declined rapidly over the past couple of weeks and is now mainly bed bound.

Written by
Bob40 profile image
Bob40
To view profiles and participate in discussions please or .
Read more about...
7 Replies
Yvonneandgeorge profile image
Yvonneandgeorge

Shayak this illness is so horrible, seeing out loves ones like this. Welcome to the group, everyone is lovely on here, always a shoulder to cry on. Yvonne xxxx

Bob40 profile image
Bob40 in reply to Yvonneandgeorge

Thank you. Such quick responses on here!

NannaB profile image
NannaB

I'm so sorry your mum has this awful disease. Welcome to the site. It sounds as if your mum has been ill for some time so you may have the answer to some of our questions. If not, I hope you find the site as helpful and comforting as I have.

Nanna B

X

Bob40 profile image
Bob40 in reply to NannaB

Thank you Nanna B

nellienoonoo profile image
nellienoonoo

Hi my husband also has CBD he also has declined rapidly over the last few months he is now bed bound but he is still at home his legs are now stuck in the fetal position and he is in terrible pain.

Bob40 profile image
Bob40 in reply to nellienoonoo

I'm so sorry, it's heartbreaking

Bob40 profile image
Bob40

My mum was only diagnosed in January whilst in hospital and a visiting specialist from the neuro centre in Walton visited her. Up until then they thought it was vascular dementia even though it was her co-ordination skills that were declining. Unfortunately mum never came home as her needs became to great. The nursing home is brilliant but it is a truly horrendous disease. I have also realised after meeting several doctors who have been called out to see mum that they don't know much about CBD.

You may also like...

New

Brian has just this week been diognosed with psp. I am full of hope rather then despair now. He has...

New to this.. mum has CBD

Hi everyone.. my mum was finally diagnosed with CBD approx 2 years ago when she was 64. Symptoms...

The end and a new beginning

had Valerie's funeral today and I'm now sitting quietly on my own having a \\"medicinal\\" brandy....

Hi there new to all this

withPSP but I think it has been coming on for a two or three years and is now accelerating...

A new start I suppose

Veronica had organised it that was what she would have done . But now ,as I was warned by so...