I mean no disrespect to the many brave, selfless and infinitely kind people who subscribe to this board, which is truly a blessing. However, and this has nothing to do with you but with the medical profession, there is a deep seated problem and that is the matter of age. I first started getting really ill when I was 36. I am now 50 and soon to die. I firmly believe that this is something with which some of us are born and which is triggered by events to take it to the next phase. All I am trying, not especially articulately, to say is that PSP can bite at any time and the British authorities don't understand. While I received an official diagnosis in weeks in Hong Kong and from private practitioners in the UK, the NHS will still not diagnose me - largely, it seems, because I am "too young" (the baby face doesn't help). So I don't get any care or financial support. It is a disgrace. I don't get cross - perhaps the best feature of my personality - but as my life ebbs away in indignity I am bloody cross now. There, off my chest. Sorry to have bothered you.
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