jhon

[laila123]

hi everyone not been on since jhon died hope you are all well fighting like mad to get this illness reconised so there is more suporrt out there having a big function in memery of jhon will keep you posted if anyone needs any advise on how too get anything i am here take care god bless

[easterncedar]

Thank you so much for thinking of all of us while you are going through such a hard time yourself, Laila. I hope your memories of jhon and your knowledge that you fought for him as mightily as could be are comforting you. Love and peace, Easterncedar.

[Yvonneandgeorge in reply to easterncedar]

Yes thank you for thinking of us, how are you doing? No one seems to want to know about PSP . Yvonne

[laila123 in reply to Yvonneandgeorge]

i no i have been told that im the first to get it on the death certivacate i made the decision to let him go no pain at homr with all around him he did not suffer i need to fight to get it reconised nobdy seems to wont to no yet demensio parkinsons are all reconised yet psp which is both is not hoping to go to a meeting but cant remember wre they are hope all is well with you

[NannaB]

Hi Laila, it's good to hear from you. You are probably still in a difficult place but I hope you have found that there is a good life after PSP. I hope the big function goes as you want it to and it is the good memories of Jhon that are emphasised.

Sending you a big hug. Thank's for thinking of us all.

X

[jillannf6 in reply to NannaB]

hi all]

i agree with what nanna b has said above

lol Jill

hugs and xxxx t o you all

[cabbagecottage]

Nice to hear from you and know you are thinking of everyone on here . Thank you , hugs x

[jillannf6]

nanna b)

see reply above