Food for thought

My sister sent my mom this book, it looks very interesting.

drperlmutter.com/about/brai...

Obviously no way back for my dad, but new info is always welcome.

progressive supranuclear palsy

[NannaB]

I've just read the article on the website you posted and found it very interesting. Soon after my husband was diagnosed with PSP in 2010, I asked the neurologist if it could have been caused by him having ulcerative colitis since 1977. His colon was so ulcerated that nutrients were not being absorbed through it's wall and he had to have supplements delivered intravenously. I asked the neurologist, if his brain had been starved of vital nutrients could it cause the illness. He said no, it couldn't. Now they have appeared to find a link between the gut and the brain perhaps what I said was not quite as stupid as I thought it was. It will be interesting reading further.

Thanks for the info.

Nanna B

[Hidden in reply to NannaB]

Apparently my dad has been taking meds for stomach acid for the last 30 yrs.

[vlh4444]

This is interesting. I hadn't thought there was a connection with the gut however I have wondered for some time about the connection with autoimmune disorders. Many members of D's family on his mother's side suffer or did suffer with a variety of autoimmune diseases. Two uncles had Krohn's Disease, his mother and brother both had ulcerative colitis, mother had Hodgkin's Disease and brother had Non-Hodgkin's Lymphoma (or the other way round, I can't quite remember). His niece has Krohn's and our eldest daughter has otosclerosis and ITP (Ideopathic Thrombocytopenia Purpura) - all of these have an autoimmune connection. D himself hasn't had anything like this in the past but one of the first symptoms he suffered from (about 10 years ago) was acid reflux which was investigated and put down to a hiatus hernia.

Does anyone know anything more about an autoimmune/PSP link?

Vicki

[Christine47 in reply to vlh4444]

You may be interested in the book "The Autoimmune Epidemic"

Bodies Gone Haywire in a World out of Balance and the Cutting Edge Science that Promises Hope by Donna Jackson Nakazawa

[Amilazy]

Interesting article in line with a lot of research that what we eat/drink can affect us in many ways. Does not apply to M's PSP as she always healthy never ill until PSP. She always tried to cook from fresh, though saying that very limited fruit so could be a link. But PSP seems to be different for everyone. I agree with NannaB the doctors do not know everything and more often than not we carers have some good ideas of causes and what best for our loved ones.

Thanks for the info.

[cabbagecottage]

our Oarkinsons nurse is very excited that they are looking into the gut /Parkinson's .

john also has auto immune problems

[Christine47]

We are familiar with the book and my husband is on a minimal grain diet. He also gets probiotics (in pill form) and prebiotics (kefir). I am hoping to slow the progression. Fingers are crossed. You may also find a post by Strelley, Cause of PSP....reflections: , done a couple of years ago. All his posts were very informative.