I am indeed inspired after reading the many article on PSP and now know I am not alone - my husband was finally diagnosed with PSP in 2010-11 and we downsized due to numerous falls he had - initially I had no clue of this disease and it left me quite exhausted. Presently he is in a care facility which made it even more difficult for me to let it happen I was devastated - have now come to terms with this and realized as time went by I could not handle it - he has good care and I visit him almost every day and spend time with him - he lost his speech and presently stiffness has set in - he keeps his eyes shut a lot and we have a difficult time to get him to open them. He is lucky as his children are around him often - it sure is a terrible disease
my husband travelled often to Japan, China, Israel ,India and the States loved his crosswords and ofcourse politics and now to see him like this is unbelievable . He eats well, and does have problems with swallowing/choking - he is now not able to walk much due to his stiffness so from the chair to the bed - I did try lately to lift him and had to call the nurse to help me and was scolded for trying. I pray the Lord will keep me strong and that as time goes by eases my husbands pain and suffering, meantime trying to enjoy the sunshine before the winter sets in.
presently he has UTI and is on antibiotics. So help me along the journey,